Old 11-10-2015, 09:42 PM #1 (permalink)
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Default Almost 4 months of symptoms..each day feels worse

Hello and thank you for taking the time to read and hopefully answer this post. Mid July I was walking and my foot felt weird. When I got back to my car I realized my second toe wouldn't bend. It was locked straight. I couldn't even move it with my hands. I also noticed twitching in the arch of my foot. I made an appointment with my G.P. He suggested I have an MRI the results were negative of MS . My twitching continued in my foot and spread to arms legs and stomach. All but my feet would happen at random times. The foot continued almost none stop. After a month I had strong twitching around the elbow for one day. After that I noticed small twitching on pinky side of hand. Also when I make a fist the hand between pinky and wrist sucks in until I release my hand. I was referred to a Neurologist The first off August. He gave me a clinical exam and said he didn't see a need for EMG. Since then I feel as if I have declined. My twitching in my foot has gotten so strong it makes my Big toe move left to right. Also I have noticed when I attempt to walk down stairs my legs turn to jello. I can walk up with no problems, but down makes me look like Frankenstein. After that I feel like I've done some big leg workout. Also after sex my legs are extremely weak, and sore for a few days. I have a Neuro appointment with a Specialist at the end of December. The wait it tuff to say the least. Also I notice I shake a lot with simple things like resting on my elbow or arm. I have some discomfort in my ankle and Achilles on the foot that twitches. Any ideas or thoughts would be appreciated. Thank you
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Old 11-10-2015, 10:25 PM #2 (permalink)
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Default Re: Almost 4 months of symptoms..each day feels worse

Never heard of a toe locking up in ALS. In ALS, muscles go limp.
The neurologist decided you didn’t have a neuro problem. ALS is a neuro problem.
The kind of weakness you’re described sounds like it comes and goes. ALS weakness never gets better.
Twitching is common to many conditions. It’s not diagnostic of ALS at all.
I don’t know what you’ve got, but you’re not describing ALS.
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Old 11-10-2015, 11:04 PM #3 (permalink)
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Default Re: Almost 4 months of symptoms..each day feels worse

Thank you for your reply. Starting this week my pinky toe has become hammered. It just curls up next to the toe its closest to. My GP is really confused by my symptoms and thought it would be better I see a specialist. The first Neuro was really dismissive due to my age mid 30s ..
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Old 11-11-2015, 12:12 AM #4 (permalink)
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Default Re: Almost 4 months of symptoms..each day feels worse

While muscles do spasm in ALS, the twitching, weakness, twisting in so many areas sounds like something else entirely -- meanwhile, I would try a massage/hot bath/nutritional regimen to see how much better it can be before your appt. Calcium, magnesium, potassium and sodium balance is one thing to consider. I'd lay off stairs and any heavy exercise in favor of stretching, walking, swimming and such.

Bottom line, as Mike says, you may have a problem but it's not ALS.
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