Old 10-27-2015, 10:35 PM #1 (permalink)
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Default 2 year later...

Hello old friends.

Im atm laying in my bed. The feets, calves, the tounge have clinical proved fibrillations and fasciculation. Some stiffness/burning legs, but when i think of you guys, it cant even be compared.
What started nearly 3 year ago with a numb leg and weak hand was not ALS. It was a genetical nerve myelin disease. Charcot-Marie tooth/HNPP. Im checking into this forum now and then and just wishes for a cure soon. I did 10 ice bucket challenge videos Wish i could do more. Stay in touch. Hugs xo
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Old 10-28-2015, 02:08 AM #2 (permalink)
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Default Re: 2 year later...

Welcome back, Christopher. Sad to see you got a crappy diagnosis after all.
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Old 11-02-2015, 09:57 AM #3 (permalink)
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Default Re: 2 year later...

Thank you Atsugi. I remember you were there for me during my ALS ruling out and my anxiety and depression was high. Would like to thank you now afterhand when im more calmer. Keep the good work up
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