lamosara
New member
- Joined
- Aug 12, 2015
- Messages
- 3
- Reason
- Learn about ALS
- Country
- US
- State
- MN
- City
- Forest Lake
Hello, I will just get right to my situation, I know you guys answer a lot of this type of question and from what I can tell all VERY knowledgeable.
I am a 35 yr old F. I was married 3 years ago and had 2 kids since then, they are 2 and 1, 8 mos apart. Life sure is crazy around here and rarely is anything ever about me. So the fact that I am here is telling.
It all started about 10 months ago (rough estimate) We moved our bedroom downstairs so that my kids could have their rooms together upstairs. I would notice that I would have severe pain upon standing out of bed and walking up the stairs. The pain would last through the better part of the morning. I would take 800 mg of Ibuprofen (I should mention here that I take 90mg of Methadone every morning, for chemical dependency from years back, so this too would help ease the pain) by about 12 I am feeling better, only notice when I walk upstairs, go for walks etc...I feel fine in general otherwise as long as not exercising.
This pain persisted and became worse over time. I would also get crazy cramps in my legs and they often fell asleep on me, usually while I was in bed either sleeping or trying to sleep. I also got them in my foot. My arms would fall asleep also.
I brought it up to my GP a month ago and she referred me to a Neuro. I seen him last week. He noted no clinical weakeness but has ordered an MRI, EMG and blood work.
I didn't understand why? I wasn't real worried about anything serious until after this appt. (I am not scheduled until Sept 9th, so have been on google like MAD!) After this apt, literally the next day, I noticed twitches in both calfs, and since have noticed them pretty much everywhere. They are def worse in my calfs. (constant)
I am now wondering if the Neuro noticed the twitches in my calfs while doing his exam but didn't tell me and that's why he ordered the EMG.
I am also having twitches in my eye now, and they are continuous also, So annoying!
Can anyone tell me if this has ALS written on it? I ruined an entire getaway weekend stressing over this.
Another thing, my hair has been falling out steadily for a couple of years now. Thanks in advance for any and all replies.
Sara
I am a 35 yr old F. I was married 3 years ago and had 2 kids since then, they are 2 and 1, 8 mos apart. Life sure is crazy around here and rarely is anything ever about me. So the fact that I am here is telling.
It all started about 10 months ago (rough estimate) We moved our bedroom downstairs so that my kids could have their rooms together upstairs. I would notice that I would have severe pain upon standing out of bed and walking up the stairs. The pain would last through the better part of the morning. I would take 800 mg of Ibuprofen (I should mention here that I take 90mg of Methadone every morning, for chemical dependency from years back, so this too would help ease the pain) by about 12 I am feeling better, only notice when I walk upstairs, go for walks etc...I feel fine in general otherwise as long as not exercising.
This pain persisted and became worse over time. I would also get crazy cramps in my legs and they often fell asleep on me, usually while I was in bed either sleeping or trying to sleep. I also got them in my foot. My arms would fall asleep also.
I brought it up to my GP a month ago and she referred me to a Neuro. I seen him last week. He noted no clinical weakeness but has ordered an MRI, EMG and blood work.
I didn't understand why? I wasn't real worried about anything serious until after this appt. (I am not scheduled until Sept 9th, so have been on google like MAD!) After this apt, literally the next day, I noticed twitches in both calfs, and since have noticed them pretty much everywhere. They are def worse in my calfs. (constant)
I am now wondering if the Neuro noticed the twitches in my calfs while doing his exam but didn't tell me and that's why he ordered the EMG.
I am also having twitches in my eye now, and they are continuous also, So annoying!
Can anyone tell me if this has ALS written on it? I ruined an entire getaway weekend stressing over this.
Another thing, my hair has been falling out steadily for a couple of years now. Thanks in advance for any and all replies.
Sara