07-23-2007, 03:42 PM
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#1 (permalink)
| | Senior Member Registered Member Join Date: 2006 City: Carencro State: Louisiana Country: USA
Posts: 649
|  Good News
OK Yall.
Good News. The muscle looks absolutely fine??? So, evidently, it's uneven weight loss, not atrophy, according to the biopsy. There was absolutely nothing she saw wrong with it, no denervation, no problem with the stains.
I showed her my positive lyme test, she adamantley said, this is most likely lyme, esp. with the positive ELISA and said that i need to see an infections disease lyme expert ASAP.
I have to say, thanks to all of you, you all care so much. I've gotta get outta houston, but for those of you who have alot of what i've had, i would suggest getting specalized testing.
I will be back soon.
regards to all
Jamie
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07-23-2007, 03:55 PM
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#2 (permalink)
| | Member Registered Member Join Date: 2007 City: Vancouver State: WA Country: USA Diagnosed: 03/2007
Posts: 208
|  That IS GREAT News
I am smiling from ear to ear! Stay in touch if you'd like and keep on movin' toward your healing!
All the best! Frizzel
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07-23-2007, 04:06 PM
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#3 (permalink)
| | Extremely Helpful Member Registered Member Join Date: 2006 City: Tara State: Dixieland Country: USA Diagnosed: 09/2006
Posts: 2,663
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Jamie,
Wonderful news!!!
Hope you get the treatment to for that Lyme and live happily ever after! I hope you never have to worry about something like ALS again.
Perhaps your experience will help someone else who is undxd!
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07-23-2007, 04:06 PM
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#4 (permalink)
| | Senior Member Registered Member Join Date: 2007 City: N/A State: idaho Country: usa
Posts: 601
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Jamie:
Congratulations. Now you can go on and live your life! Please keep the rest of us struggling with what we believe to be ALS in your prayers.
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07-23-2007, 04:21 PM
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#5 (permalink)
| | Senior Member Registered Member Join Date: 2007 City: Tomball State: Texas Country: United States
Posts: 995
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Quote: |
Originally Posted by Jamiet OK Yall.
Good News. The muscle looks absolutely fine??? So, evidently, it's uneven weight loss, not atrophy, according to the biopsy. There was absolutely nothing she saw wrong with it, no denervation, no problem with the stains.
I showed her my positive lyme test, she adamantley said, this is most likely lyme, esp. with the positive ELISA and said that i need to see an infections disease lyme expert ASAP.
I have to say, thanks to all of you, you all care so much. I've gotta get outta houston, but for those of you who have alot of what i've had, i would suggest getting specalized testing.
I will be back soon.
regards to all
Jamie | ..
Oh Jamie, I am so happy for you. Thank God. I did a lot of praying for you. God bless you, and your family. Keep us posted about everything you do, and enjoy life!
Your friend,
Irma
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07-23-2007, 04:21 PM
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#6 (permalink)
| | New Member (Say Hi) Registered Member Join Date: 2007 City: Lakewood State: Colorado Country: USA
Posts: 96
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WOOOO HOOOO!!!! Congratulations, Jamie!!! Never thought I'd be congratulating someone for having lyme disease...but it's just like congratulating Leslie for her dx -- ANYTHING is better than ALS. After being so sure you had ALS, it must feel a bit disorienting to have your life given back...take it easy on yourself. What are you going to do to celebrate, maybe try to get some sleep  ? VERY best wishes for your recovery! Sharon
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07-23-2007, 04:29 PM
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#7 (permalink)
| | Senior Member Registered Member Join Date: 2007 City: Mobile State: Alabama Country: Uni Diagnosed: 00/0000
Posts: 601
| Jamie, You are right!
Good News For You!!!
Another ALS patient that lives in the same County that Tim and I live in, persisted last week that I get Tim a Lyme disease test. I thought he had one from me hounding him when he lived in WV. He is not sure the Doc. had one done. I have convinced the Research/Specialist I seen last week to see Tim and have one done. Among other test.
I do highly recommend it.
Great to hear you don't has ALS!!!
Lorie  | |
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07-23-2007, 06:54 PM
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#8 (permalink)
| | Member Registered Member Join Date: 2007 City: unknown State: unknown Country: uni Diagnosed: 00/0000
Posts: 159
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Jamie -I am happy for you! I hope that you and your family have a wonderful celebration. I called my doctor to be tested for lyme- I was bitten by a tick- several months ago but thought nothing of it.
I hope you stay on here too | |
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07-23-2007, 07:22 PM
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#9 (permalink)
| | Moderator Registered Member Join Date: 2006 City: Anytown State: New England Country: USA Diagnosed: 00/0000
Posts: 3,823
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Great news, Jamie. Looks like you and your lovely family have a lot of celebrating to do! How wonderful for you all! Cindy
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07-23-2007, 07:54 PM
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#10 (permalink)
| | Senior Member Registered Member Join Date: 2007 City: Elmira State: NY Country: USA
Posts: 776
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Jamie - I am so happy your biopsy did not show als! You know that it is now ruled out, after the amount of time you have been suffering symptoms. You may feel a let down later on, but just keep the smile on that it is not als. You will figure this out and be well again. Hang in there buddy!! ~Leslie
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07-23-2007, 09:56 PM
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#11 (permalink)
| | New Member (Say Hi) Registered Member Join Date: 2007 City: Jacksonville State: Alabama Country: US Diagnosed: 03/2007
Posts: 67
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YEEHAW!! Jamie what wonderful news!!!!! Praises to our Father. He is merciful!!! Noe take a deep breath and get to work fighting that nasty tick. I hope your recovery goes quickly and smoothly. Keep us up to date. Heres to you, sherry
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07-23-2007, 10:48 PM
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#12 (permalink)
| | Banned Registered Member Join Date: 2007 City: Philadelphia State: PA Country: USA Diagnosed: 00/0000
Posts: 187
| Yo Big Man
Congrats brother!!! You have given me some hope while I wait for my results. You know I got some questions for you when you got a minute...
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07-24-2007, 08:28 AM
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#13 (permalink)
| | New Member (Say Hi) Registered Member Join Date: 2007 City: Sanger State: Tx Country: US
Posts: 20
| Jamie thats great news
Proves one thing for sure prayer does help.. Im so glad that you dont have to travel this road, but always remember no matter which road you travel you are not alone....wm | |
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07-24-2007, 08:46 AM
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#14 (permalink)
| | New Member (Say Hi) Registered Member Join Date: 2007 City: Spring State: Texas Country: USA
Posts: 15
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Jamie that is wonderful news and I am so happy for you!
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07-24-2007, 10:37 AM
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#15 (permalink)
| | Member Registered Member Join Date: 2006 City: Vashon State: Washington Country: USA
Posts: 278
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Jamie, This is fantastic! I hope you are able to get effective treatment. I admit I know nothing about what it entails or how long it takes to recover from Lyme's disease. However it goes though, you will have the support and love of your family and be there to see your babies grow up. That is the most important thing. Sincerely, Holly
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