toolowgear
New member
- Joined
- Jun 29, 2015
- Messages
- 4
- Reason
- Learn about ALS
- Country
- US
- State
- NY
- City
- New York
Sorry to do what most do by asking do I have ALS? But I am very terrified. :-(
I have been getting these symptoms the past 6 months it started with a feeling of muscle movement ni my arms and legs. Then I started getting lots an lots of muscle twitches all over my body mainly in my arms and legs, so much its annoying me a lot as they are so frequent. I feel as the last 6 months has gone on things are getting worse. My tongue whilst not trembling the way it would in advanced ALS does feel like it twitches now and then but these following 2 symptoms are scaring me...
I read someone else who posted here had the same signs - They said they noticed that when they tried try to move an arm/tongue/jaw etc. they felt like for a split second the signal was delayed to that part of the body. I HAVE THIS :-( I feel this all over my body at times and it comes and goes.
I go to the gym now and then but I go through long periods where I do not go. When I go back and do bicep curls and that my biceps and forearms will ache for 3-5 days after which I know is normal. I have not been to the gym for a while and the other week I went and did bicep curls and after as expected my arms felt and ached. This time its different as 10 days on my muscles still feel tense and achey after the gym and its going to be 11 days tomorrow now. I did not lift very heavy weights so why is this taking so long? Is this because I have ALS and the muscle cannot recover as much? I heard people with ALS should not go to the gym is this why? Also when I type on my computer my forearm muscles often feel they are getting weak like when I am in the gym and doing repetitions and the muscles are burning out. I worry this is ALS?
I did go to a doctor about the twitches and he referred me to a Neuro who was a grumpy man who would not really answer any questions I had. He ordered some blood tests and MRI of my head which was all normal. I also had a test called an Upper EMG? where they stuck needles in my arms which hurt. He said that was normal. After my follow up he said to just come back in 6 months. He has left me confused why ask me to come back in 6 months if he feels everything is ok?
I have read on here that people say an EMG is the golden test for ALS so it makes me think I don't have it as my EMG he said was "Clean" but I just had something called demyelination. I read on this forum that some people with ALS also had clean EMG's and had aching muscles also, so this makes me think I do have it. It seems its hard to get a conclusive diagnosis. I am also sleeping a lot these days.
Could someone help me? Is there a chance I could have ALS?
I am male aged 50.
God bless you all.
Andy
I have been getting these symptoms the past 6 months it started with a feeling of muscle movement ni my arms and legs. Then I started getting lots an lots of muscle twitches all over my body mainly in my arms and legs, so much its annoying me a lot as they are so frequent. I feel as the last 6 months has gone on things are getting worse. My tongue whilst not trembling the way it would in advanced ALS does feel like it twitches now and then but these following 2 symptoms are scaring me...
I read someone else who posted here had the same signs - They said they noticed that when they tried try to move an arm/tongue/jaw etc. they felt like for a split second the signal was delayed to that part of the body. I HAVE THIS :-( I feel this all over my body at times and it comes and goes.
I go to the gym now and then but I go through long periods where I do not go. When I go back and do bicep curls and that my biceps and forearms will ache for 3-5 days after which I know is normal. I have not been to the gym for a while and the other week I went and did bicep curls and after as expected my arms felt and ached. This time its different as 10 days on my muscles still feel tense and achey after the gym and its going to be 11 days tomorrow now. I did not lift very heavy weights so why is this taking so long? Is this because I have ALS and the muscle cannot recover as much? I heard people with ALS should not go to the gym is this why? Also when I type on my computer my forearm muscles often feel they are getting weak like when I am in the gym and doing repetitions and the muscles are burning out. I worry this is ALS?
I did go to a doctor about the twitches and he referred me to a Neuro who was a grumpy man who would not really answer any questions I had. He ordered some blood tests and MRI of my head which was all normal. I also had a test called an Upper EMG? where they stuck needles in my arms which hurt. He said that was normal. After my follow up he said to just come back in 6 months. He has left me confused why ask me to come back in 6 months if he feels everything is ok?
I have read on here that people say an EMG is the golden test for ALS so it makes me think I don't have it as my EMG he said was "Clean" but I just had something called demyelination. I read on this forum that some people with ALS also had clean EMG's and had aching muscles also, so this makes me think I do have it. It seems its hard to get a conclusive diagnosis. I am also sleeping a lot these days.
Could someone help me? Is there a chance I could have ALS?
I am male aged 50.
God bless you all.
Andy