MommaTeresa
Member
- Joined
- Dec 21, 2014
- Messages
- 28
- Reason
- Other
- Country
- US
- State
- LA
- City
- NWLA
Well, my "diagnostic merry-go-round" thread was closed, but I did want to report back on my diagnostic journeys.
Just left a new neurologist who did EMG on my legs and said NO ALS! {exhale!}
He is referring me to Dr. Harati in Houston. He said that in my area, there is nobody to conduct and read a muscle biopsy or do testing for rare disorders and that I will probably also need a spinal tap, etc. He suspects possibly a mitochondria disorder or "a rare bird" and so is sending me to Houston with a referral to diagnose muscle cramping.
He stated that stress can cause cramps and spasms, however the more we talked the less he thought that was the issue. I asked him IF it were stress, how could I tease that out? What could I do to determine that? His answer: Go to Houston.
Thanks to all who were so helpful to me. Forgive me for even being a DIHALS-er!
To those wondering if you have ALS, I promise you the only way to find out is to see a neurologist, or two, and have testing. I had a lot of symptoms that you can read on my previous post ("on the diagnostic merry-go-round") and NO ALS.
Just sayin'...
Just left a new neurologist who did EMG on my legs and said NO ALS! {exhale!}
He is referring me to Dr. Harati in Houston. He said that in my area, there is nobody to conduct and read a muscle biopsy or do testing for rare disorders and that I will probably also need a spinal tap, etc. He suspects possibly a mitochondria disorder or "a rare bird" and so is sending me to Houston with a referral to diagnose muscle cramping.
He stated that stress can cause cramps and spasms, however the more we talked the less he thought that was the issue. I asked him IF it were stress, how could I tease that out? What could I do to determine that? His answer: Go to Houston.
Thanks to all who were so helpful to me. Forgive me for even being a DIHALS-er!
To those wondering if you have ALS, I promise you the only way to find out is to see a neurologist, or two, and have testing. I had a lot of symptoms that you can read on my previous post ("on the diagnostic merry-go-round") and NO ALS.
Just sayin'...