Old 07-14-2007, 01:08 PM #1 (permalink)
Banned
 
Join Date: 2007
City: Philadelphia
State: PA
Country: US
Interest: I have a medical problem, MND is a possibility.
Posts: 173
lhagsjr is on a distinguished road
lhagsjr lhagsjr is offline
Banned
Join Date: 2007
City: Philadelphia
State: PA
Country: US
Interest: I have a medical problem, MND is a possibility.
Posts: 173
lhagsjr is on a distinguished road
Default Back from Biopsy...

They put me to sleep so it didnt hurt but it hurts like hell today but only when I walk on it. The neurosurgeon came to see me after and told me, "the muscle looks healthy, but we wont know for sure until it goes through a series of tests." Can they really tell a little something just by looking at it? Anyway, to tell you the truth im not really bugging out about the results. They are what they are and there is nothing I can do to change them. Im actually happy that this process is finally over. This was the last test that can be done. No more waiting, no more trying to convince the Docs to do a test, no more wondering what I have. It will be known in black and white in a few weeks. For a while I thought for sure it was ALS, then the doc told me possible myopathy after the EMG, so I went with that. Then again I was thinking ALS. To tell you the truth I dont know whats going on, but soon I wont need to guess...

I really appreciate 3 members in particular, Jamie. Jamie is close to my age and I feel like we have been on the same journey only he is a few months ahead of me. AnnMarie has just been so nice to me and everyone and of course Leslie. It looks like we will be linked as my docs thinks myopathy as well. Actually I would hope this is what comes out of the biopsy.... Thank you guys for everything. Im going to stay on the board as well, hopefully the results say NO ALS. Pray for me.

Thanks,
Lou
lhagsjr is offline  
Old 07-14-2007, 01:20 PM #2 (permalink)
Jamiet's Avatar
Senior Member
 
Join Date: 2006
City: Carencro
State: Louisiana
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 627
Jamiet is on a distinguished road
Jamiet Jamiet is offline
Senior Member
Jamiet's Avatar
Join Date: 2006
City: Carencro
State: Louisiana
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 627
Jamiet is on a distinguished road
Default

Lou you lucky dog...i'm jealous....they put you to sleep.....

Well trust me..i was in enough pain for both of us when they cut mine out.

I'm glad to hear the doc said the muscle looked healthy. They didn't tell me that....and when i called last week...the dr's nurse told me that they didn't have my results yet...but funny enough...she always messed with me when i would call her, would give me a hard time about me thinking i had ALS. This time.....when i was getting off the phone with her this time....she didn't give me a hard time...just told me "not to give up".....hmmm...what did that mean ya'll....am i looking too far into this?

Don't know, but good news seems to be on the forum lately at least some...poor beebe..i feel horrible for her yall.

Anyway Lou...i'm really glad for you...isn't it funny, i'm glad you my have a myopathy...isn't it funnny how life changes..i mean....a year ago...would you have been glad to have a myopathy? It's strange how this changes your life. It amazes me to see all the people walking around....not a worry on their mind and some have very little respect for their life.

well it's raining here and i've got nothing to do but blabber here.....


enough said..lol

good day to all and go hug your family, kiss your spouse and kids one extra time today.

rgds,

jamie
Jamiet is offline  
Old 07-14-2007, 01:34 PM #3 (permalink)
Banned
 
Join Date: 2007
City: Philadelphia
State: PA
Country: US
Interest: I have a medical problem, MND is a possibility.
Posts: 173
lhagsjr is on a distinguished road
lhagsjr lhagsjr is offline
Banned
Join Date: 2007
City: Philadelphia
State: PA
Country: US
Interest: I have a medical problem, MND is a possibility.
Posts: 173
lhagsjr is on a distinguished road
Default It Is funny...

that im sitting here praying for myopathy.

Jamie, dont read into the person who answers the phone. They dont know anything.

Oh and what happened to Beebe? Besides the obvious diagnosed of her son-in-law. Did something else happen?
lhagsjr is offline  
Old 07-14-2007, 03:49 PM #4 (permalink)
Senior Member
 
Join Date: 2007
City: Elmira
State: NY
Country: US
Interest: Have symptoms of MND
Posts: 704
ltr is on a distinguished road
ltr ltr is offline
Senior Member
Join Date: 2007
City: Elmira
State: NY
Country: US
Interest: Have symptoms of MND
Posts: 704
ltr is on a distinguished road
Default

Lou - you are lucky twofold that they put you out - when they put you out they are taking a much bigger sample. When you get the Lidocaine, it's a needle biopsy, even though the needle is the size of a pencil and goes in your leg a good 4-6 inches! That's probably why they were able to tell you the muscle looked healthy and not me and Jamie.

And like all your friends here are saying, we hope for myopathy, even though that's an awful disease. If yours turns out to be myopathy, you know at least one person who can feel your pain. I know my life is agony, a struggle to get through everyday. But, it's nice to put a name on the pain, the weakness, the vibrations (which I now know are fibrillations) and let's not forget the total exhaustion and fasciculations. I'm glad we met on this forum so that we can chat about our progress and help each other along the way, if yours is myopathy. I think that even with the diagnosis you will still wonder if it will change along the way, especially if you don't respond right away to therapy. I know it sounds shallow, but I still worry that I won't be able to tolerate the steroids and it will progress. Myopathy can progress like als and end with respiratory, so be glad that you are doing what you can to figure it out now. The sooner the better. For me it has been one year and eight months. I hope not too long.

Jamie, Jamie, Jamie........there could be a zillion reasons why the nurse didn't act the same to you. She could have been having a bad day, there could have been a patient waiting on the other line or sitting at her desk, her husband might be a jerk, or maybe she was hungry?!? Don't read into it, we all act different on different days. I do think they know something, though. They wouldn't give me much info either.

Keep us informed. When is your follow-up appt. so we can look forward to that day?
~Leslie
ltr is offline  
Old 07-14-2007, 04:13 PM #5 (permalink)
Jamiet's Avatar
Senior Member
 
Join Date: 2006
City: Carencro
State: Louisiana
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 627
Jamiet is on a distinguished road
Jamiet Jamiet is offline
Senior Member
Jamiet's Avatar
Join Date: 2006
City: Carencro
State: Louisiana
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 627
Jamiet is on a distinguished road
Default

Leslie...if she gives me crap..i'll let you get ahold of her...lololololololol

i had to say it.....

This one's got me laughing yalll..........you owe me on now leslie...

love yall lots......HAVE A GREAT WEEKEND....


Rgds

jamie
Jamiet is offline  
Old 07-14-2007, 05:29 PM #6 (permalink)
Senior Member
 
Join Date: 2007
City: Elmira
State: NY
Country: US
Interest: Have symptoms of MND
Posts: 704
ltr is on a distinguished road
ltr ltr is offline
Senior Member
Join Date: 2007
City: Elmira
State: NY
Country: US
Interest: Have symptoms of MND
Posts: 704
ltr is on a distinguished road
Default

That's right, Leslie believes in fair treatment for all.......so.....if she gives you any crap, let me know! Cheesy smiles right back at ya!
ltr is offline  
Closed Thread

Tags
age, als, back, biopsy, emg, hope, ice, muscle, sleep, tests


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Muscle biopsy amysgarden General Discussion About ALS/MND 25 05-30-2015 04:43 PM
had my biopsy wendya432 General Discussion About PLS 35 07-20-2014 09:50 AM
Muscle biopsy Suhernan Do I Have ALS? Is This ALS? 6 03-01-2014 07:17 AM
muscle biopsy rstutes Newly Diagnosed 0 12-03-2013 09:49 AM
Skin Biopsy shelleynshaggy General Discussion About ALS/MND 11 10-12-2010 08:59 AM
muscle biopsy Everlast Do I Have ALS? Is This ALS? 11 05-25-2009 05:44 PM
Results from biopsy Felicia38 General Discussion About ALS/MND 3 04-28-2009 02:57 PM
Muscle Biopsy zaff4444 General Discussion About ALS/MND 16 01-29-2009 02:08 PM
muscle biopsy awieleba General Discussion About ALS/MND 7 08-03-2008 06:07 AM
My Biopsy Results lhagsjr Do I Have ALS? Is This ALS? 13 08-24-2007 03:18 PM


All times are GMT -5. The time now is 09:29 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016