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Janbrit

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Joined
Jul 16, 2014
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81
Reason
PALS
Diagnosis
08/2014
Country
Uk
State
Kent
City
at the back of beyond
Reading through this forum as I often do for advice and looking at the DHIALS forum it strikes me that no one who questions us PALS seem to consider exactly what the the term progressive means

a.An example of something that would be described as progressive is a disease or illness that gradually gets worse.

ALS does not get any better; it gets worse each day, each month or if we are very very lucky each year. Its relentless onslaught does not improve with rest so to those of you who can rest and find that you can then feel improvement you do not have ALS.

We call it MND here in the UK and I well remember asking my Neuro when they were testing if he was looking at MND and him replying yes I am, I'm sorry but its the progression of what you are suffering leads me down that path
 
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