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aegento

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Feb 23, 2015
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Reason
Learn about ALS
Country
Tur
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City
Ankara
First of all,
Hello everyone. I'm Utku from Turkey-22 yo
It's all began two weeks ago with twitchs all around body but especially right leg. And there was strange feelings on right leg and arm. I was pretty scared and getting nervous about it. In two weeks, twitchs became less.
So decided to see neuro. First neuro asked for blood test. It came normal. She said that probably because of stress, there is no big deal but to make sure ask for egm.
So today I went neuro. After clinical examine, she said there was no weakness, atrophy but brisky reflex. She made emg. So here my results: [copy instead of linking]


Writing of bottom of the page: Motor and sensory conduction speed, bsap and bkap are normal. There are widespread mild acute denervation shown at egm. High Mup's amplitudes , times are long and polyphasic.

Sorry for bad english. My neuro suggest to see another prof. and there should be more deeply testing to diagnose.
I'm scared to death. Is this egm result point the begining of ALS? I'm just 22 yo. I know there are younger people with ALS but don't know. I will go another neuro tomorrow. But don't think i will be able to sleep this night.
 
Utku, the report you copied is sketchy, but only suggests some kind of nerve problem, which can be due to many causes, some concerning and some not. As you know, 22 would be very young, almost unheard of for ALS. Try to sleep and stay off the net. I think the 2nd neuro will have better answers for you.
 
Hi, Uktu. Don't worry about ALS.

ALS isn't about strange feelings. ALS means muscles are paralyzed, limp and useless without feeling strange at all.

Twitching can be anything at all.

Sleep soundly, this doesn't sound like ALS at all.
 
Thank you for encouraging replies.
I tried to upload my egm results. Hope works this time.
Words of widespread- acute mild denervation is the part i can only thing.
Actually neuro who made the emg test, was very suprised. She did not expect such kind of result. She said that she just getting ready to tell me it's just anxiety or stress, so there is no big problem. However after needle part, she tell me " we can not ignore the results and need forward test. Also she added there are planty of disease cause for that and in my case while considering my age, clinical examine without weakness,atrophy or anhy other signs. Maybe she just said that to make me relax and calm because I was crying at that moment
gkOX90.jpg
 
Is it that bad? Gonna crazy
 
Aegento,

Right now it could be due to a whole lust of things, pinched nerve, spinal compression etc. I know how you feel I have been dealing with this for 2 years now and have a list of symptoms like yourself and other and no diagnosis. At this poin the only thing i can recommend is to keep calm stay positive and wait to see the other neurologist. I dont believe you have als but you have symptoms and want answers that wont come easy. Good luck!
 
Up!
Any other comment please?
 
Hi, I do have one comment: EMGs must be interpreted in the context of clinical signs and symptoms. Many people have fasciculations on EMG, but they are not clinically significant.

I have PLS, and my EMGs showed scattered fasciculations in deltoids and other. But even though I have an upper motor neuron disease, I wasn't told "NOW you need to worry that this could be ALS!" Why? Because I did not have other lower motor neuron signs.
 
You said in your original post that you had an appointment the following day with another neurologist. Surely you discussed this with him or her. Why ask us? They have had the opportunity to see and examine you and are professionally educated in this area. Presumably they offered an opinion which is more valid than anything we can offer
 
I went another neuro today. He checked my results and considering to my age there.would not be important thing. He said i.know you just googled your syptom and your emg result and now you thought you get motor neuron diasaes or als but in your case i do.not expect anything significant. Also he added emg is depend on doc who made and told me 3 prof name which expert on motor neuron and.muscle diases also pretty good.emger. He said just to clear your mind, go and see them. So i will.try to take appoint
One of them as soon as.possible. But i m a bit good as mentally now.
 
Also i want to add there is no als clinic in here, turkey. So we just have to right person to see. It make things hard.
 
I hope one of those specialists can finally put your fears to rest.
 
I hope one of those specialists can finally put your fears to rest.

Thank you Nuts. I hope so too. There is nothing else that i want so badly.
And ofc i want to believe with all my heart that the cure will be found. You know maybe and probably( i hope) i do not.have serious condition but reading comments,real experience made me much much more aware. I really can only imagine ( maybe even cannot) how much you guys have been throwing and try to stay stronger and can manage this. Even your answers to questions here, maybe you guys the stronger, fabolous people i can talk.to. Really dont know why i m writing things maybe i just want to make you a lit bit feel better on my own, maybe tired to hear things like that really dont know. Sorry if i made or say something stupid,please forgive me.
 
Merhaba Agento. I m from Turkey just like you but i will write in English for other members and for forum rules. i understand you perfectly. Coz its such a hard situation. But just try to relaxing. U and me know how our doctors weird, strange in Turkey. Some of them even cant explain to results of emg or mri. But according to result it looks you have no als. I have read your emg result and in my result i have mups too. I dont understand it to be honest and when asked to my doctor she said its not about motorn noron or als, it means there is a damaged or somethings like that and happend long time ago. So my brother pls try to be relax and calm. If u have no weakness dont think about it.
 
Utku, by the way if u will be relax, u can go to different nerology doctor.
 
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