lotusturk
Active member
- Joined
- May 13, 2011
- Messages
- 33
- Reason
- Learn about ALS
- Country
- TR
- State
- Turkey
- City
- istanbul
Hello to everybody. I wish all people here getting well soon and i pray for it everytime.
I m male, 33 years old and from Turkey.
45 days ago suddenly i felt a weird pain on left side of my head and after it on my left feet weakness started. It was a so strange feeling coz when i was walking i was feeling like there is no feet. A kind of emptyness feeling. Like there is no feet. At the same time i have twitches but i have all kind of twitches. It means i can see some of them with my eye and some of them just can feel under my skin.(its als twitching as understood from people who has als)
I went to nerology department and made some blood test. She wanted almost all tests and all of my results are ok. Cretain Kinaz is normal too. She wanted back mri and emg. She wrote to paper Als? My back mri result is not okay. I have two little hernia and those hernias on my right side. She said that your hernias cant effect your left side coz they are on the right side.
Well, they made me emg. During the test he said all is okay but when he put electrot on my feet and when i moved my feet to down it didnt give signal. He said move your feet to up not down. Then it gaved normal signal. At the result all is ok he said and i showed to my result to doctor and she said its normal result and no problem. When i asked to her so whats that? She said it can be psychologic. Its really funny for me. How can psychology can make weakness just on left feet? Ok, nevermind (by the way i can say that Turkish health systems, hospitals, doctors really so so bad and they dont dig people's spthoms)
In 45 days i can feel it my feet is getting worst, for few days this feeling on my leg now and never gone. Its like this feeling started from my feet and spreaded to my leg. Now i feel my leg so so weak and tired. I have muscle stifness. Its like a pain and cant describe it clearly. I still can walk and move but feel tired feelings on my left leg so early.
I wonder that Als can spread like that so fast in 45 days? Or what should i do? Coz i know two things. In blood Creatin Kinaz usually become so high in Als illness but not everytrime. Because alot of people who has als their Ck is normal. Mine is normal too so its not a big deal i think. Second, in the beginin emg test cant show Als sometimes. I have read alot of comments about it and sometimes after 2 or 3 emg later doctors can diagnose to people with als.
So what should i do? I think i can just wait and watch the spthoms. To be honest i m thinking that i have Als.
Thank you to everybody. Sorry for my English. Its bad, i know. Again sorry for people who are here and who are als or relative of als ilness coz i know that some people here write answer to questions with one finger or with one hand. So for that again so sorry for disturbing you.
Good night.
I m male, 33 years old and from Turkey.
45 days ago suddenly i felt a weird pain on left side of my head and after it on my left feet weakness started. It was a so strange feeling coz when i was walking i was feeling like there is no feet. A kind of emptyness feeling. Like there is no feet. At the same time i have twitches but i have all kind of twitches. It means i can see some of them with my eye and some of them just can feel under my skin.(its als twitching as understood from people who has als)
I went to nerology department and made some blood test. She wanted almost all tests and all of my results are ok. Cretain Kinaz is normal too. She wanted back mri and emg. She wrote to paper Als? My back mri result is not okay. I have two little hernia and those hernias on my right side. She said that your hernias cant effect your left side coz they are on the right side.
Well, they made me emg. During the test he said all is okay but when he put electrot on my feet and when i moved my feet to down it didnt give signal. He said move your feet to up not down. Then it gaved normal signal. At the result all is ok he said and i showed to my result to doctor and she said its normal result and no problem. When i asked to her so whats that? She said it can be psychologic. Its really funny for me. How can psychology can make weakness just on left feet? Ok, nevermind (by the way i can say that Turkish health systems, hospitals, doctors really so so bad and they dont dig people's spthoms)
In 45 days i can feel it my feet is getting worst, for few days this feeling on my leg now and never gone. Its like this feeling started from my feet and spreaded to my leg. Now i feel my leg so so weak and tired. I have muscle stifness. Its like a pain and cant describe it clearly. I still can walk and move but feel tired feelings on my left leg so early.
I wonder that Als can spread like that so fast in 45 days? Or what should i do? Coz i know two things. In blood Creatin Kinaz usually become so high in Als illness but not everytrime. Because alot of people who has als their Ck is normal. Mine is normal too so its not a big deal i think. Second, in the beginin emg test cant show Als sometimes. I have read alot of comments about it and sometimes after 2 or 3 emg later doctors can diagnose to people with als.
So what should i do? I think i can just wait and watch the spthoms. To be honest i m thinking that i have Als.
Thank you to everybody. Sorry for my English. Its bad, i know. Again sorry for people who are here and who are als or relative of als ilness coz i know that some people here write answer to questions with one finger or with one hand. So for that again so sorry for disturbing you.
Good night.
