Worrier36
New member
- Joined
- Jan 3, 2015
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- Tx
- City
- Dallas
First off, thank you for providing a forum / opportunity for others to pose questions and concerns. I have been having some weird symptoms over the last 45 days that I wanted to get your thoughts on.
Beginning during the week prior to thanksgiving, i began to have left shoulder /upper arm pain - it felt like i had been "frogged" or punched in the left shoulder and caused discomfort during sleep. By Friday, December 5th, I had left shoulder pain that had felt like a pulsating sensation and fatigueness (like i had just done 150 tricep reps) and woke up with both my left and right arm asleep. I dismissed it until the next morning when I woke up on at 2am with my left arm asleep and my entire body in a "coarse tremor" (as described by the ER physician). Went to the ER that night and was referred to a neurologist which I went to on December 12th.
During the week between 12/5 and 12/12, I had the same left shoulder / upper arm pain and a slight tremor in my left arm. I also had muscle twtiches all over my body but primarily left leg. The 12/12 neurologist visit resulted in low CK levels (below the 12/5 ER visit), slightly low magnesium levels, MRI that showed some wear and tear to C5 and C6 and "abnormal reflexes"; she set a follow up appointment for 45 days later. I specifically asked the dr if she thought it was an ALS risk (after spending too much time on internet, etc) but based upon the existing symptoms at 12/12, she said that she didn't see me at risk for ALS (i.e. the numbness, no clinical weakness, etc.)
Since the 12/12 visit, I have continued to have fairly continuous muscle twitches (primarily lower left leg from knee to ankle) and upper left arm/shoulder pain. Specifically, I can't hold up my left arm for very long (say to read an Ipad) without it feeling like it's burning from within but have continued to do workouts 2-3x a week and haven't had any meaningful issues (although I feel like my left side is struggling a slight bit vs. the right). Additionally, as I've begun to check my body everyday, I've noticed that my left peck and left bicep are harder to flex than the right side...although no noticeable strength difference.
Haven't had any other tests (EMG, etc.) but 45 days of stressing I'm sure is starting to strain me...would be interested to her if anyone had similar experiences and outcomes.
Beginning during the week prior to thanksgiving, i began to have left shoulder /upper arm pain - it felt like i had been "frogged" or punched in the left shoulder and caused discomfort during sleep. By Friday, December 5th, I had left shoulder pain that had felt like a pulsating sensation and fatigueness (like i had just done 150 tricep reps) and woke up with both my left and right arm asleep. I dismissed it until the next morning when I woke up on at 2am with my left arm asleep and my entire body in a "coarse tremor" (as described by the ER physician). Went to the ER that night and was referred to a neurologist which I went to on December 12th.
During the week between 12/5 and 12/12, I had the same left shoulder / upper arm pain and a slight tremor in my left arm. I also had muscle twtiches all over my body but primarily left leg. The 12/12 neurologist visit resulted in low CK levels (below the 12/5 ER visit), slightly low magnesium levels, MRI that showed some wear and tear to C5 and C6 and "abnormal reflexes"; she set a follow up appointment for 45 days later. I specifically asked the dr if she thought it was an ALS risk (after spending too much time on internet, etc) but based upon the existing symptoms at 12/12, she said that she didn't see me at risk for ALS (i.e. the numbness, no clinical weakness, etc.)
Since the 12/12 visit, I have continued to have fairly continuous muscle twitches (primarily lower left leg from knee to ankle) and upper left arm/shoulder pain. Specifically, I can't hold up my left arm for very long (say to read an Ipad) without it feeling like it's burning from within but have continued to do workouts 2-3x a week and haven't had any meaningful issues (although I feel like my left side is struggling a slight bit vs. the right). Additionally, as I've begun to check my body everyday, I've noticed that my left peck and left bicep are harder to flex than the right side...although no noticeable strength difference.
Haven't had any other tests (EMG, etc.) but 45 days of stressing I'm sure is starting to strain me...would be interested to her if anyone had similar experiences and outcomes.
