cmax
New member
- Joined
- Jul 2, 2011
- Messages
- 4
- Reason
- Loved one DX
- Country
- CA
- State
- BC
- City
- Vancouver
Hi, I just wanted to thank you for being so open with those coming on the first time. My mother passed away from ALS about 7 years ago so I know how this disease impacts lives! My mother was an extremely strong woman and she fought ALS tooth and nail to the end. Even when she could have been confined to bed 24/7, she insisted on being gotten up, dressed, etc and making sure her favorite radio station was playing. She also insisted on spelling out everything on her board as opposed to pointing to what she wanted. She is my hero. And even tho I know that it is highly unlikely that I will develop the disease, I tend to go thru a scare every couple of years being hyper vigilant. I am going thru one right now, and have an apt. to get nerve testing done in a couple of months, but in the meantime, the stickies were really helpful settling my mind. I have some nerve stuff going on in a hand with numbness pain, (which I read is not ALS symptomatic), and have had pain and cramping in a foot and muscle pain in the calf medial outside muscle which I worry is a sign of possible weakness. As well, of course, I have been having fasciculations going on everywhere. I realize that you on the forum must get sick of people writing in fearfully, but it is helpful, and I do want you all to realize it even if you want to give us a slap sometimes. Thanks for reading. The worry wart daughter.