- Joined
- Nov 18, 2014
- Messages
- 4,873
- Reason
- PALS
- Diagnosis
- 08/2015
- Country
- US
- State
- South
- City
- The Beach
I have hyperreflexia but I think I've had it for quite a few years, although it is much more pronounced. My lower EMG was abnormal. The neuro said it was probably just a lower back problem and did not elaborate. I have difficulty swallowing. I do have some other conditions (herniated disc in neck is one) but I've fallen twice in the past year. Tripped both times.
Two weeks ago I woke up with a pain (I know all the warnings ALS does not = pain). The pain was in my rib area near right breast. It hurt to breathe and move. It was an agonizing pain like I had broken ribs. MRI negative for rib. I was referred to pulmonary and my FVC was only 68.9. I'm 59 years old, normal weight, and pretty active considering my pain level from herniated disc. My oxygen saturation was normal at 98.5. It said my "lung age" was 84 because of the breathing test. It does hurt when I breathe in so I'm not sure if that had any effect on the test but it scared me because I thought I did well.
The neuro had ordered the swallow test two months ago but my insurance denied it.
Normal brain MRI so MS ruled out.
I do seem to have weakness. No Babinski reflex. Some tremors and spasms but non specific.
I'm so scared I don't know what to do.
Two weeks ago I woke up with a pain (I know all the warnings ALS does not = pain). The pain was in my rib area near right breast. It hurt to breathe and move. It was an agonizing pain like I had broken ribs. MRI negative for rib. I was referred to pulmonary and my FVC was only 68.9. I'm 59 years old, normal weight, and pretty active considering my pain level from herniated disc. My oxygen saturation was normal at 98.5. It said my "lung age" was 84 because of the breathing test. It does hurt when I breathe in so I'm not sure if that had any effect on the test but it scared me because I thought I did well.
The neuro had ordered the swallow test two months ago but my insurance denied it.
Normal brain MRI so MS ruled out.
I do seem to have weakness. No Babinski reflex. Some tremors and spasms but non specific.
I'm so scared I don't know what to do.