Blondrea
Active member
- Joined
- Oct 27, 2014
- Messages
- 88
- Reason
- CALS
- Country
- US
- State
- CA
- City
- Sherman Oaks
I am terrified. My boyfriend has had fasciculations all over his body for two years. He went to a neurologist recently, who said he tested weak in his hand. He went back for EMG and NCS. At that point, the neurologist said that fibrillations were detected, and Motor Neuron Disease was “highly likely.” When asked if that meant ALS, she again said “highly likely.” And, when we pulled his office visit record up online, and it says: Diagnosis – Motor Neuron Disease.
We are sick with shock. Other than the fasciculations, which have been going on for two years, he has no other symptoms. He can pick up two iron skillets with his “weak” hand. His balance is perfect. No slurs. No foot drop. No fine motor skill problems. He can run five miles uphill, and is the leader of a hiking group.
So I am wondering, are EMG tests so reliable that someone would make a diagnosis of “highly likely”? Granted it was in conjunction with the NCS and strength tests. I know that the EMG is the “gold standard” of the tests, but is it that strong and reliable of an indicator?
Has anyone else experienced this? No symptoms and being told that ALS is “highly likely”?
We are awating a referral to a Motor Neuron Disease specialist. Any advice/input would be tremendously helpful. Thank you!
We are sick with shock. Other than the fasciculations, which have been going on for two years, he has no other symptoms. He can pick up two iron skillets with his “weak” hand. His balance is perfect. No slurs. No foot drop. No fine motor skill problems. He can run five miles uphill, and is the leader of a hiking group.
So I am wondering, are EMG tests so reliable that someone would make a diagnosis of “highly likely”? Granted it was in conjunction with the NCS and strength tests. I know that the EMG is the “gold standard” of the tests, but is it that strong and reliable of an indicator?
Has anyone else experienced this? No symptoms and being told that ALS is “highly likely”?
We are awating a referral to a Motor Neuron Disease specialist. Any advice/input would be tremendously helpful. Thank you!