christrejo
New member
- Joined
- Oct 25, 2014
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 08/2014
- Country
- la
- State
- ca
- City
- east los angeles
Hi sorry to all that suffer from the disease i just have some concerns i would like to share and get your opinion on then ill leqve and i did read the stickies but unfortunately the stickies dont write back so please just a moment of your time alsforum and ill be gone k , i have been dealing with this scare of als for 2 months it started in my legs with weakness and sorness and ocasional pain feet stiff in the mornings often legs have a vibrating feeling inside them all over twitching that is real quick and tounge twitches while at rest and shakes when i stick it out and when i have my mouth open my lips and cheeks shake* and tounge* looks like its getting smaller scalloped edges a lil bit also i do all the tests i can still tent my cheeks move my tounge side to side fast put my tounge to sides of cheeks and resist force when i ask someone to push my tounge thru cheeks , wake up deeling weak and tired all the time went thru a stage where food was constantly gettin stuck but that subsided i dont slurr but i feel like i do like words are harde to say sometimes and when talking sometimes i feel like i have to catch my breathe more si have been to 2 neuroologists first one didint satisfy me so i got a second opinion no babinski no hyperflexia no hoffmans past all tests they both performed and both said i didint have als and im strong no weakness could walk on heels and tippyttoes should i belive them cause i belive i have bulbar als but both of them didint check my mouth area they just said u dont have it i have a emg scheduled nov 11 but they said i dont need to take the test im just so worried my tounge twitches it loos like its getting smaller im scared everyday that im gona slurr like im drunk or choke on liquids so does bulbar als startbin legs and move to mouth idk any advice please