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Mtzu

Distinguished member
Joined
Oct 24, 2014
Messages
186
Reason
PALS
Diagnosis
04/2015
Country
US
State
California
City
Los Angeles
I'm new here. I've been reading a number of the discussions on here for a while. In November two years ago I noticed that I had ongoing twitching in my right arm. In time it spread all over my body. I thought it might be from and intensive trail running workout I was putting myself through. The twitching continued so I mentioned it to my doctor at my annual physical this past spring and she said it was most likely a mineral deficiency.

Well, they continued so I saw the doctor again and she sent me to a neurologist. The neuro told me that my left hand was a little weaker than my right but I seem strong everywhere else. She had me return for an EMG and it should both fasciculations and fibrillations. She's now referred me to an MND specialist. I feel strong. I run the hills and do hard workouts with sand bags and kettlebells. But these findings are creating a lot of anxiety for me. Does anyone know of people who had had twitching for two or more years that was followed by the bad company of the other presentations of ALS/MND? Thank you in advance.
 
Well, yes; it can happen. But...
But, no; you're worried about a rare disease because you were diagnosed with fascics and fibs.
Follow up with the MND expert, but don't worry yourself needlessly in the meantime.

ALS is rare. But I'll give you my most practical advice.
What are you going to do about it if you do have ALS? There is nothing that can be done.
But if you believe you might have a fatal disease, then buy a million dollars of life insurance before you get your diagnosis.
 
>What are you going to do about it if you do have ALS? There is nothing that can be done.
But if you believe you might have a fatal disease, then buy a million dollars of life insurance before you get your diagnosis.

more! :)
 
Thank you gentlemen for your replies. You're right, I should look at upping my coverage if I can. The first neurologist I went to wrote on my file that the diagnosis is Motor Neuron Disease so I'm not sure how that might complicate underwriting. I'm hoping the MND specialist disagrees. But, I don't know how that works. I guess I'm really bewildered by the MND diagnosis and what I'm experiencing. I must say I'm very confused.
 
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