reanne2489
Member
- Joined
- Sep 9, 2014
- Messages
- 11
- Reason
- Learn about ALS
- Country
- UK
- State
- Down
- City
- Bangor
Hi all,
I apologise from the off for returning, but wanted to post an update and ask for your expert advice re: the findings.
I had been consoling myself with the BFS forum site over the past number of weeks whilst waiting for my MRI and EMG...and this is the latest post I put on there...
Hi all,
As many of you know, I have been twitching since the beginning of September. It is constant in my left leg and occurs sporadically in my right leg, abdomen, shoulders, biceps and left eye.
I had a lumbar MRI = Clean and had an EMG in my left calf only after about 4 1/2 weeks of twitching which also came back clean, just with a sensory abnormality. I don't have any clinical weakness, just some perceived weakness- if I stand on my tip toes on each individual foot I am much less steady on my left leg and feel the strain on my left foot much more.
I am worried still because of the amount of pain I experience in my knee, left calf and arch of my left foot. I have already mentioned that my left leg is thinner than the right- especially noticeable at the knee and around the top of the thigh. I have also noticed that the arch of my left foot, where the pain is, is more inwardly curved than the right...I am soooo worried this is atrophy, which is accompanying the twitching I measured around my foot and it's almost 0.4cm smaller than the right and that's ALOT for a foot! I also get stiffness in my toes.
I have been told my pelvis is misaligned and out of rotation [lower on the left side] by my physio but I haven't really done anything to trigger the pain to come on this intensely so I can't separate it from the twitching and accept that it's just an alignment issue...also for foot pain caused by misalignment I have read that it cause flat feet rather than more pronounced arches...
I know BFS can cause aches and pains but this leg size discrepancy, and the NON STOP twitching and now this apparent atrophy in my foot is scaring me that I am going to be one of the unlucky few who exhibit the rarest of ALS symptoms at the youngest of ages. I know ALS is generally painless, but have read of patient cases where they explained that they felt cramps [which I also get in my foot arches] but also of other muscle pain which they felt was down to the fact their muscles were having to compensate for weakness.
I am just so worried, but my doctor has told me to try and ignore the pain, but I find this hard to accept when the pain is unrelenting [especially when at rest] and has no other cause [like an injury] - it accompanied the twitching after about 3/4 weeks of it starting.
Any of your advice would be welcomed.
Thank you
I apologise from the off for returning, but wanted to post an update and ask for your expert advice re: the findings.
I had been consoling myself with the BFS forum site over the past number of weeks whilst waiting for my MRI and EMG...and this is the latest post I put on there...
Hi all,
As many of you know, I have been twitching since the beginning of September. It is constant in my left leg and occurs sporadically in my right leg, abdomen, shoulders, biceps and left eye.
I had a lumbar MRI = Clean and had an EMG in my left calf only after about 4 1/2 weeks of twitching which also came back clean, just with a sensory abnormality. I don't have any clinical weakness, just some perceived weakness- if I stand on my tip toes on each individual foot I am much less steady on my left leg and feel the strain on my left foot much more.
I am worried still because of the amount of pain I experience in my knee, left calf and arch of my left foot. I have already mentioned that my left leg is thinner than the right- especially noticeable at the knee and around the top of the thigh. I have also noticed that the arch of my left foot, where the pain is, is more inwardly curved than the right...I am soooo worried this is atrophy, which is accompanying the twitching I measured around my foot and it's almost 0.4cm smaller than the right and that's ALOT for a foot! I also get stiffness in my toes.
I have been told my pelvis is misaligned and out of rotation [lower on the left side] by my physio but I haven't really done anything to trigger the pain to come on this intensely so I can't separate it from the twitching and accept that it's just an alignment issue...also for foot pain caused by misalignment I have read that it cause flat feet rather than more pronounced arches...
I know BFS can cause aches and pains but this leg size discrepancy, and the NON STOP twitching and now this apparent atrophy in my foot is scaring me that I am going to be one of the unlucky few who exhibit the rarest of ALS symptoms at the youngest of ages. I know ALS is generally painless, but have read of patient cases where they explained that they felt cramps [which I also get in my foot arches] but also of other muscle pain which they felt was down to the fact their muscles were having to compensate for weakness.
I am just so worried, but my doctor has told me to try and ignore the pain, but I find this hard to accept when the pain is unrelenting [especially when at rest] and has no other cause [like an injury] - it accompanied the twitching after about 3/4 weeks of it starting.
Any of your advice would be welcomed.
Thank you