jjgevf
Member
- Joined
- Apr 3, 2011
- Messages
- 14
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- LA
- City
- Ball
Well, it's been a long time since I was here. For the ones that don't remember, I was having dizziness, twitching and problems with swallowing. Then I started having muscle cramps with some odd weakness feelings. Even some shortness of breath! Everyone scolded me good about going to a neuro and not just sitting around worrying about ALS. I was scared and did go to a neuro dr. I was told it wasn't ALS, but never told what was going on. I begin to believe it was panic disorder, like some on this forum told me. Well after years of searching for a answer and going to anoth neuro doctor, I've been told it's seizures! I have them at night only while sleeping. And had no idea, that was causesing all my problems. So I wanted to update everyone one here and for the ones thinking they have ALS, just because it looks to you that what your experiencing is ALS, doesn't make it so. I would never have believed seizures was my issue and now I know there are seizures that cause my issues. Go to a doctor or two and find answers and get help, I knew down inside something was wrong and it wasn't in my head. I'm glad I didn't listen to the ones that told me it was just all in my head. Be proactive in your health! Good luck to all the ones searching for answers, I hope your journey like mine leads to something other than ALS. And to the ones bravely battling this ugly diease....God bless and good luck.