Jacob
New member
- Joined
- Oct 22, 2014
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- PA
- City
- Greensburg
Hi there. I'm Jacob. I don't really know where to begin with this story, but I'll start with my family. My father has MS, and he's almost on his twentieth year and he's helping me get through all these crazy symptoms and keeping me calm. He's very positive for the condition he is in!
Some of these symptoms may be related, some of them may not. I'm not sure yet, and yes I realize the people reading this are not doctors, but I figured I'd get some help here.
I'm 20 years old, almost 21 in a month!
So about 3-5 months ago, I ended up feeling a burning sensation in both of my legs. I thought that was very strange but I let it go. After a couple of weeks it actually reappeared and became more and more frequent, everyday actually. I went to the neurologist and got some bloodwork and everything seemed fine (what he checked I am not sure, but I know it was a lot) and ended up having to get a nerve conduction test, alongside an MRI of my brain, and that came up clear also. At the time I wasn't doing much, just mostly sitting at my computer, and I didn't have a job, or my diploma. While I would sit at my computer I would feel like on the left foot, inbetween the second and third toe, it felt like there was a small spasm occuring there and it would spasm every 30-60 minutes. Shrugging it off as bad nerves, I continued my regular routine. Afterwards I ended up getting a lot of shooting pains in my legs, never at the same time but both of them. Finally I decided I wanted to get my life together because I have a girlfriend I love very much and want to be able to move out and support her, so I moved in with my grandmother to get on track, so I can be where I'm suppose to be at 20 years old instead of lagging behind. The burning in my legs still persisted and a lot of times it was bilateral and once in a while it was on one side. One night I was laying down and my muscle in my arm started spasming, and I really thought that was weird. It then began to happen in my legs too! Both of them, every 30-120 seconds something else would spasm, even parts of my tongue! Once again I thought that was very strange, but I slept it off. When I awoke the next morning the symptoms still continued and that's when I started to get a little worried. My grandmother ended up touching my shoulder and it jumped immediately afterwards! It was like it was really overreactive. I chalked it up to anxiety but then after a while if I would like bump my head every so slightly on the top of the shower curtain when I got in, in the morning, my head jumped back! It didn't even hurt in the slightest, but I jumped. It started happening more and more often with little things, bump my arm it would jump, and while I would fall asleep at night my legs and arms will jump and are accompanied by muscles twitching, and sometimes burning pain throughout my day on and off. The neurologist said he's pretty sure I have RLS (restless leg syndrome) and I said, Doctor, the twitching and jerking is happening in my arms and legs, tongue, and anywhere else on my body! He said something along the lines of "I know, I know! It's a very strange name for a disease that can affect a lot of you in some patients" About 2 weeks ago I got a job as a cart pusher! So now I'm like fulltime pretty much between school and work! Also cartpushing is no easy task! So far I've been doing pretty well with it, (haven't managed to nick a car yet!) and I've been doing it for about a week. I hurt very badly in my legs but that's definitely because the job is definitely physically exercising. I noticed while I'm working the twitching dissipates nearly completely. Even the leg burning has completely stopped at night, (so the exercise must be helping at least a little bit!) The shooting pains still happen, and have even moved to my hands (which put me on edge when that started happening) the twitching comes back when I wake up the next morning, but it happens when I get off of work (so far I've worked an 11 hour shift, and 3, 8 hour shifts) but it's much much more mild. Oh and I forgot to mention in the center of my left foot, it feels like it's spasming ever so slightly. It doesn't hurt but it feels almost like a very slight "breathing" vibration in that foot. It will happen most often at rest, about every 5-10 seconds. and started about 2 weeks ago. Also when I woke up the next morning after the vibrations, I got up and felt very surreal. I was experiencing depersonalization and was very dizzy and that affected me for about 4 days but then went away, but the depersonalization still comes and goes, but the dizziness has MOSTLY subsided.
Thank you guys for reading my post. I have went over the sticky at the top and I know some of these symtpoms aren't traditional. I have another neurologist appointment on the 18th of November. I'm not sure if I buy the RLS thing especially once more symptoms started happening. Thank you guys once again!
Some of these symptoms may be related, some of them may not. I'm not sure yet, and yes I realize the people reading this are not doctors, but I figured I'd get some help here.
I'm 20 years old, almost 21 in a month!
So about 3-5 months ago, I ended up feeling a burning sensation in both of my legs. I thought that was very strange but I let it go. After a couple of weeks it actually reappeared and became more and more frequent, everyday actually. I went to the neurologist and got some bloodwork and everything seemed fine (what he checked I am not sure, but I know it was a lot) and ended up having to get a nerve conduction test, alongside an MRI of my brain, and that came up clear also. At the time I wasn't doing much, just mostly sitting at my computer, and I didn't have a job, or my diploma. While I would sit at my computer I would feel like on the left foot, inbetween the second and third toe, it felt like there was a small spasm occuring there and it would spasm every 30-60 minutes. Shrugging it off as bad nerves, I continued my regular routine. Afterwards I ended up getting a lot of shooting pains in my legs, never at the same time but both of them. Finally I decided I wanted to get my life together because I have a girlfriend I love very much and want to be able to move out and support her, so I moved in with my grandmother to get on track, so I can be where I'm suppose to be at 20 years old instead of lagging behind. The burning in my legs still persisted and a lot of times it was bilateral and once in a while it was on one side. One night I was laying down and my muscle in my arm started spasming, and I really thought that was weird. It then began to happen in my legs too! Both of them, every 30-120 seconds something else would spasm, even parts of my tongue! Once again I thought that was very strange, but I slept it off. When I awoke the next morning the symptoms still continued and that's when I started to get a little worried. My grandmother ended up touching my shoulder and it jumped immediately afterwards! It was like it was really overreactive. I chalked it up to anxiety but then after a while if I would like bump my head every so slightly on the top of the shower curtain when I got in, in the morning, my head jumped back! It didn't even hurt in the slightest, but I jumped. It started happening more and more often with little things, bump my arm it would jump, and while I would fall asleep at night my legs and arms will jump and are accompanied by muscles twitching, and sometimes burning pain throughout my day on and off. The neurologist said he's pretty sure I have RLS (restless leg syndrome) and I said, Doctor, the twitching and jerking is happening in my arms and legs, tongue, and anywhere else on my body! He said something along the lines of "I know, I know! It's a very strange name for a disease that can affect a lot of you in some patients" About 2 weeks ago I got a job as a cart pusher! So now I'm like fulltime pretty much between school and work! Also cartpushing is no easy task! So far I've been doing pretty well with it, (haven't managed to nick a car yet!) and I've been doing it for about a week. I hurt very badly in my legs but that's definitely because the job is definitely physically exercising. I noticed while I'm working the twitching dissipates nearly completely. Even the leg burning has completely stopped at night, (so the exercise must be helping at least a little bit!) The shooting pains still happen, and have even moved to my hands (which put me on edge when that started happening) the twitching comes back when I wake up the next morning, but it happens when I get off of work (so far I've worked an 11 hour shift, and 3, 8 hour shifts) but it's much much more mild. Oh and I forgot to mention in the center of my left foot, it feels like it's spasming ever so slightly. It doesn't hurt but it feels almost like a very slight "breathing" vibration in that foot. It will happen most often at rest, about every 5-10 seconds. and started about 2 weeks ago. Also when I woke up the next morning after the vibrations, I got up and felt very surreal. I was experiencing depersonalization and was very dizzy and that affected me for about 4 days but then went away, but the depersonalization still comes and goes, but the dizziness has MOSTLY subsided.
Thank you guys for reading my post. I have went over the sticky at the top and I know some of these symtpoms aren't traditional. I have another neurologist appointment on the 18th of November. I'm not sure if I buy the RLS thing especially once more symptoms started happening. Thank you guys once again!