hoek67
New member
- Joined
- Oct 21, 2014
- Messages
- 1
- Reason
- Other
- Country
- AU
- State
- Victoria
- City
- Mount Beauty
Hi, I've been unwell for a few years and no one has been able to put a handle on it so to speak.
I have been aware of MND for ages as it's been getting a lot of press and the diversity of people getting it seems to be expanding.
I get VERY tired all the time for no reason, after being up for 4+ hours I have no option but to lie down... completely stuffed. This alone interferes with my life a lot.
I'm basically a single dad of a 12 yo daughter as my wife is in other care 90% of the time because of mental illness she acquired after child birth. I have real problems looking after myself and daughter at times so it's VERY hard when my wife is home.
Anyway, I have noticed recently I'm not able to clench my hands with any real pressure and in the last month I'm always getting very bad pins and needles when sleeping. This can effect both arms and/or both legs. I also noticed when hanging clothes out on the line I have no strength in my elbows to put the clothes up and winding the hoist up which is usually easy with 1 hand now takes 2 and some effort. Also standing in 1 spot for a while (a few minutes) makes my legs hurt to the point I need to sit.
Simple things like putting my socks on have become harder because of pain and inability to lift my feet up without grabbing them.
I've just turned 47 and don't drink, smoke or do drugs.
From what I know a normal "standard" blood test will not diagnose MND and it has to specifically be asked for.
I have been thinking seriously about getting life insurance and hoping I have to pay them for the next 20+ years.
If I had MND I could accept it, but the thought of telling my family does my head in so to speak.
I have been aware of MND for ages as it's been getting a lot of press and the diversity of people getting it seems to be expanding.
I get VERY tired all the time for no reason, after being up for 4+ hours I have no option but to lie down... completely stuffed. This alone interferes with my life a lot.
I'm basically a single dad of a 12 yo daughter as my wife is in other care 90% of the time because of mental illness she acquired after child birth. I have real problems looking after myself and daughter at times so it's VERY hard when my wife is home.
Anyway, I have noticed recently I'm not able to clench my hands with any real pressure and in the last month I'm always getting very bad pins and needles when sleeping. This can effect both arms and/or both legs. I also noticed when hanging clothes out on the line I have no strength in my elbows to put the clothes up and winding the hoist up which is usually easy with 1 hand now takes 2 and some effort. Also standing in 1 spot for a while (a few minutes) makes my legs hurt to the point I need to sit.
Simple things like putting my socks on have become harder because of pain and inability to lift my feet up without grabbing them.
I've just turned 47 and don't drink, smoke or do drugs.
From what I know a normal "standard" blood test will not diagnose MND and it has to specifically be asked for.
I have been thinking seriously about getting life insurance and hoping I have to pay them for the next 20+ years.
If I had MND I could accept it, but the thought of telling my family does my head in so to speak.