FrenchFries
Member
- Joined
- Jun 17, 2014
- Messages
- 29
- Reason
- Other
- Country
- FR
- State
- Paris
- City
- Paris
That's maybe what some of you are going to say! I already read all the caned responses some of you have posted.... Maybe it's what I need to read now... (I’m French so please do not pay attention to my grammar and narcissim.)
It's been a while ( 6 month I would tell) that I am coming along this forum weekly to read the stickies again and again... trying to do understand my condition.
I can’t help myself from thinking that ALS is to me, rationally, the most probable diagnosis. I have checked every possible differential diagnosis but no one fits.
Here’s my condition summary (progressive spreading, no good day)
Novembre 2012 : foggy legs, tingling, pain, burning, fatigability
June 2013: hands now affected + facics from time to time + fatigability getting worse
January 2014: all the body is affected (facics+fatigability) + face tingling and pain. Muscles are shaking for a minimal effort when I contract them.
July : all my head and face muscles are getting stiff, all my body is getting weaker,fatigability worse.
Now : I have facics in my face and in all my body episodically, neck head and face very stiff as if my face and throat has been covered with a glue layer: muscle resistance to contraction is increased. I still can hide it but I guess within 2 months, I may not speak intelligibly.
full blood tests, brain and medular MRI, 2 EMG (january and july 2014): all clean.
I know what you’re going to tell me : Pain, tinglings, clean emg rule out ALS.
But the fact is : I do not manage to rationally think this way. Something is not clear to me. I think for example that emg cannot detect early disorder linked to als, I think Pain and tinglings do not rule out ALS and I think fatigability may lead to weakness.
So As I am sure something very very wrong is happening to me, with bulbar region involvement, with fascics and fatigability, something progressive over years...; I can't help it...
David
It's been a while ( 6 month I would tell) that I am coming along this forum weekly to read the stickies again and again... trying to do understand my condition.
I can’t help myself from thinking that ALS is to me, rationally, the most probable diagnosis. I have checked every possible differential diagnosis but no one fits.
Here’s my condition summary (progressive spreading, no good day)
Novembre 2012 : foggy legs, tingling, pain, burning, fatigability
June 2013: hands now affected + facics from time to time + fatigability getting worse
January 2014: all the body is affected (facics+fatigability) + face tingling and pain. Muscles are shaking for a minimal effort when I contract them.
July : all my head and face muscles are getting stiff, all my body is getting weaker,fatigability worse.
Now : I have facics in my face and in all my body episodically, neck head and face very stiff as if my face and throat has been covered with a glue layer: muscle resistance to contraction is increased. I still can hide it but I guess within 2 months, I may not speak intelligibly.
full blood tests, brain and medular MRI, 2 EMG (january and july 2014): all clean.
I know what you’re going to tell me : Pain, tinglings, clean emg rule out ALS.
But the fact is : I do not manage to rationally think this way. Something is not clear to me. I think for example that emg cannot detect early disorder linked to als, I think Pain and tinglings do not rule out ALS and I think fatigability may lead to weakness.
So As I am sure something very very wrong is happening to me, with bulbar region involvement, with fascics and fatigability, something progressive over years...; I can't help it...
David