findinghope
Member
- Joined
- Sep 15, 2014
- Messages
- 17
- Reason
- Other
- Country
- US
- State
- WI
- City
- Franklin
On 9/9 after an EMG where he found "Mild Denervation" our first Neuro diagnosed my husband with ALS (No clinical Weakness, no Hyper-reflexivity). We were sent to an ALS "Expert" Neurologist (A Dr. Barkhaus at Froedtert Hospital in Milwaukee, WI). He did an exam and found no clinical weakness, no hyper-reflexivity and also thought our first neuro's EMG results were within the normal range).
He asked to do his own EMG as a follow-up which we did this past Friday (10/3). His EMG showed normal results except for a "minor complexity" in one bicep muscle, which he thought was of "no significance". He does want to follow-up with us in January.
My husband is experiencing WIDESPREAD SYMETRICAL and CONSTANT FASCICULATION since Mid-July. I have seen a handful of cases where this was the first sign of ALS, but they don't seem to indicate whether they were accompanied by other symptoms (i.e. dirty EMG, weakness, hyper-reflexivity). My husband is still VERY scared - as the neuro has not 100% cleared him, but told him to go home, de-stress and try to relax and we'll see where you are in January...I think that added to my husband's stress. Any commentary on those cases that did begin with widespread fascics? Were they symptomatic in other way as well? Trying to be as informed as possible and also assuage his fears if I can or prepare him.
He asked to do his own EMG as a follow-up which we did this past Friday (10/3). His EMG showed normal results except for a "minor complexity" in one bicep muscle, which he thought was of "no significance". He does want to follow-up with us in January.
My husband is experiencing WIDESPREAD SYMETRICAL and CONSTANT FASCICULATION since Mid-July. I have seen a handful of cases where this was the first sign of ALS, but they don't seem to indicate whether they were accompanied by other symptoms (i.e. dirty EMG, weakness, hyper-reflexivity). My husband is still VERY scared - as the neuro has not 100% cleared him, but told him to go home, de-stress and try to relax and we'll see where you are in January...I think that added to my husband's stress. Any commentary on those cases that did begin with widespread fascics? Were they symptomatic in other way as well? Trying to be as informed as possible and also assuage his fears if I can or prepare him.