I can't sleep I'm so worried.

[NolanBurman]

I saw a doctor and have lost 10 pounds.i am 19 I was 155lbnow I'm down to 145lb. My legs feel like jello and I don't want to get out of bed to pee because I'm afraid I'll lose my balance and fall. My joints crack a lot when I move and I don't want eat because I get stomach cramps or my throat gets so tight I want to puke because it's so uncomfortable. Im all skin and bones and I think it's muscle atrophy because of how rapid I lost weight. I'm really scared. Any thoughts?

 

[Dusty7]

And what did the doctor tell you?

 

[Atsugi]

It's not muscle atrophy. You don't have ALS.

See you doctor before posting again.

 

[MaxEidswick]

>See you doctor before posting again.


Ditto that!

 

[NolanBurman]

I saw a doctor and he said it's very unlikely that I have als given my age. My parents don't want to pay for any tests and I am still so worried I might have it. I have a huge lump in my throat that won't go away and swallowing is pretty awkward. I feel like my voice is getting nasally.My leg is cramping, it also feels like it might give out or as if it isn't reallly supporting me. I'm still losing weight because I have no desire to eat or drink. All I do is worry that I have als the new lunp in my throat and nasally voice is really scary and I don't know what to do. I'm so terrified.

 

[MaxEidswick]

Well -- Several of us have tried to share our experience with you and your fears.

The consensus seems to be that you need to resolve your issues with medical professionals and/or do not have ALS.

We do empathize with your fears, but there is no more we can help you with at this time.

This note is not to deter you from your investigations, but just not on this forum.

You asked, we answered, so please move on.

If you think you have a motor neuron issue, see your Primary Care Provider and get a referral to a motor neuron qualified neuro, note: most are NOT ALS/MND (Motor Neuron Disease) experienced!

Anxiety can be a real problem that can endanger your physical health. Make sure you tell your medical practioner what you are feeling as well as how you are feeling.

No need to reply. Goodbye and best regards.


-----
Max
-----
onset 9/2010, diagnosed with ALS by Stanley Appel 8/29/2013
It Is What It Is ...

 

[skipper66]

You absolutely don't have ALS. So, leave this forum right this minute. You have no reason whatsoever to think you have it! Don't continue to say But, I have this symptom or that. You don't have it period! You need a psychiatrist and that is the best advice we can give or are going to give. So, please sign off and enjoy your young life to the fullest!

 

[Emilym80]

Hi there NolanBurman. Hope you're doing well. I have an anxiety disorder and just about every physical symptom you've described (tightness/lump in throat, legs feel like jelly, nausea, weight loss, cramps) as well as your constant worrying is totally consistent with anxiety, in my experience. If you can't sleep because you fear that you have an illness when all your symptoms suggest that this is absolutely not the case, I would talk to your doctor about seeing a psychologist; I'm not an expert but from personal experience what you're experiencing is health anxiety.

I hope it's not inappropriate for me to post this on the forum, but it seems like a lot of people come here fearing that they have this illness when, in actual fact, they are suffering from kind of anxiety, so hopefully this is of some benefit.

Please PM me if you have any questions and I'll be happy to talk to you. Otherwise, please ask your doctor about seeing a mental health specialist. Take care.

 

[Atsugi]

Emily, we welcome people who have serious questions about ALS. But I feel, in my humble opinion, that it's important for people to move along once we've ascertained they don't have ALS.

You see, unlike other websites, our members have little time and little energy and it is physically difficult for many of them to read or write. We can't afford to become a general discussion board for diagnosing other illnesses.

For this reason, I hope you'll understand that people with anxiety or other non-ALS problems should get their support elsewhere.

 

[Emilym80]

Absolutely. I myself haven't come here because I believe that I have ALS or that I need support for my anxiety, but when I saw the post I felt compelled to reply because I felt that I could either help the OP because I have experience with the same issue. I realise this probably would have been more appropriate over private message as it's not an appropriate forum for discussing other problems. Sorry.

 

[ECpara]

Emilym80, I for one found your honesty and straightforwardness a welcome change. There have been a few of you lately, admitting to anxiety and letting others know this is the root of "symptoms". Thank you!