taliaric
Member
- Joined
- Jul 18, 2014
- Messages
- 29
- Reason
- Other
- Diagnosis
- 08/2014
- Country
- US
- State
- OH
- City
- XXXXXXXX
My difficulties started with swallowing difficulties for which I went to the ER and was hospitalized in Neurology for a few days. They tested me for everything imaginable, MRI, EMG, single fiber EMG, barium swallow test, complete neuro exam etc. They originally thought that I had MG, but ruled that out. What they found was that I had "bulbar weakness" particularly in the neck and they were able to rule out a number of other neuro conditions. They discharged me and sent me for an evaluation a number of weeks later with an ENG to do a scope where they diagnosed me with tongue weakness, tongue twitching and tremor, vocal cord atrophy, and pharyngeal dysphagia. The EMG in the hospital showed L5/S1 radiculopathy and something minor with one of the muscles in my hip, but nothing else. The speech pathologist said my speech is nasal, but it is otherwise not impacted. My next neuro appointment is July 31st.
My questions are can bulbar onset ALS appear with a normal EMG? (They only did an EMG of my limbs and hip.)
What might I expect next in regard to testing and evaluation?
Many thanks for listening to my story and questions.
Jennifer
My questions are can bulbar onset ALS appear with a normal EMG? (They only did an EMG of my limbs and hip.)
What might I expect next in regard to testing and evaluation?
Many thanks for listening to my story and questions.
Jennifer