Zaranataly
Active member
- Joined
- Dec 21, 2011
- Messages
- 61
- Reason
- Learn about ALS
- Country
- US
- State
- South
- City
- City
Hi everybody,
I have been seeing a neurologist for about 3 months now.
These are the tests I'be had so far:
1. MRI brain, cervical, lumbar, thorax
2. EMG; upper & lower extremities, neck, lower back
3. blood work for myasthenia gravis
3. blood work for myopathy (creatine, some other names).
Basically on Wednesday my neurologist told me that the EMG shows decresed nerve velocity to my legs ONLY.
And that the MRI shows that I have a herniated cervical disk. She said that the herniated disk is not severe enough to explain all my symptoms but it could be a possibility.
She also said that the decreseased velocity is not bad enough as it would be in someone with symptoms for almost 3 years.
I asked her if she thought I could have other disease that mimics ALS and she couldn't give me an answer. She stated that she could not give me a diagnosis. She said that I need a second opinion and an EMG to my bulbar muscles & other tests.
She still said that she continues to "suspect" ALS but she can't say for sure. I told her "Dr. I don't want to be a medical mystery, I want to find out as soon as I can and either get the help I need or prepare for whatever is coming" and she basically shrugged her shoulders and said that she can't give me a diagnosis at this time.
She scheduled me for an appointment in 2 months!
BUT the appointment with Dr. Harati will hopefully be within the next month.
I am angry & confused. I don't know what to make of all this. I am calm but very frustrated.
Any thoughts on this?
I have been seeing a neurologist for about 3 months now.
These are the tests I'be had so far:
1. MRI brain, cervical, lumbar, thorax
2. EMG; upper & lower extremities, neck, lower back
3. blood work for myasthenia gravis
3. blood work for myopathy (creatine, some other names).
Basically on Wednesday my neurologist told me that the EMG shows decresed nerve velocity to my legs ONLY.
And that the MRI shows that I have a herniated cervical disk. She said that the herniated disk is not severe enough to explain all my symptoms but it could be a possibility.
She also said that the decreseased velocity is not bad enough as it would be in someone with symptoms for almost 3 years.
I asked her if she thought I could have other disease that mimics ALS and she couldn't give me an answer. She stated that she could not give me a diagnosis. She said that I need a second opinion and an EMG to my bulbar muscles & other tests.
She still said that she continues to "suspect" ALS but she can't say for sure. I told her "Dr. I don't want to be a medical mystery, I want to find out as soon as I can and either get the help I need or prepare for whatever is coming" and she basically shrugged her shoulders and said that she can't give me a diagnosis at this time.
She scheduled me for an appointment in 2 months!
BUT the appointment with Dr. Harati will hopefully be within the next month.
I am angry & confused. I don't know what to make of all this. I am calm but very frustrated.
Any thoughts on this?