Antologia
Active member
- Joined
- Sep 7, 2013
- Messages
- 62
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- NE
- State
- ZH
- City
- Amsterdam
So, in 3 days I'm twitching for a year. Only thing that happend in this year is in oct. the excess saliva. This is still there. And of course the pins & needles, jerks, etc, but had that since the beginning.
I can live with the twitches. It's annoying, but I don't feel them to much when I'm busy during the day. What really bothers (and still worries) me is the excess saliva.
I read about some cases here at this forum that also had twitching and saliva, but no diagnose. Unfortunately those people are not active anymore. I think this is good news, because they probably don't have ALS. But I would be very interested to know how they are doing now, I they ever found an explanation for the saliva or did it disappear?
I'm really trying to believe it's all BFS or some uncontrolled nerve-system that is giving me these problems I'm experiencing. EMG was fine, the first time. I will go back to my neuro in June, but since there are no new problems, I do not expect to much of this appointment...
If there is anyone out there with the same problems and has some answers or wants to share there story, please let me know...
I can live with the twitches. It's annoying, but I don't feel them to much when I'm busy during the day. What really bothers (and still worries) me is the excess saliva.
I read about some cases here at this forum that also had twitching and saliva, but no diagnose. Unfortunately those people are not active anymore. I think this is good news, because they probably don't have ALS. But I would be very interested to know how they are doing now, I they ever found an explanation for the saliva or did it disappear?
I'm really trying to believe it's all BFS or some uncontrolled nerve-system that is giving me these problems I'm experiencing. EMG was fine, the first time. I will go back to my neuro in June, but since there are no new problems, I do not expect to much of this appointment...
If there is anyone out there with the same problems and has some answers or wants to share there story, please let me know...