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Lisa4

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Joined
May 16, 2014
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4
Reason
Learn about ALS
Country
US
State
Ohio
City
Dayton
Hello all. I've been looking over these forums for a few weeks and can't seem to find any answers to my problem so I thought I would go ahead and register and post my own question. Let me say thank you in advance to any of you that take the time to respond to my fears. I apologize for using any of your precious time. I'm just seriously scared.

For a few weeks I've had trouble talking. I wouldn't really call it slurring (except in the mornings sometimes when I first wake up-then I have definitely slurred) but more like I have to work hard to say things right. Also, I sometimes feel like I'm having a hard time getting a bite of food down, or that my drink of water is going down the wrong way, or like my throat is closing to soon. This symptom comes and goes. I have not choked on food or drink and no one has mentioned that they've noticed a slurred speech when I talk.

My biggest fear is what my tongue is doing. When I stick it out it quivers from about the half way mark down to the tip. I read that it was usually normal for your tongue to bounce around when your sticking it out and the real test was when your tongue is resting in your mouth. So I took a look and it twitches a lot. Mostly in the middle but also on the side and towards the tip. I've been checking it out for the past couple weeks and it's pretty constant. I'm so scared. It doesn't look like the "bag of worms" some have mentioned but I looked up some YouTube videos of tongue fasc in people with ALS and they look more mild than mine does.

I have been to the doctor to no avail. I'm in the process of finding someone that cares about what I say, but in the mean time I am terrified. I'm 32 with four kids and I feel like I can't even function sometimes because I'm so scared.

Also, I have muscle twitches throughout my body as well. Usually arms and legs and they definitely come and go. They don't look like ALS twitches I've seen in the videos but I still thought I'd mention it. My calves have been cramping when I stretch at night but not while I'm resting. Thanks again for any input. I'm going to try to find a way to share my video.
 
Do your symptoms persist (or interfere) during intimate moments with your partner?
 
>I'm 32 with four kids and I feel like I can't even function sometimes because I'm so scared.
>Do your symptoms persist (or interfere) during intimate moments with your partner?

this forum is very hard to quantify.

Lisa, see a proper ALS specialist. they should have them, even in ahiya, but Eva Feldman has a proper clinic at U of M ...

All joking asode, get help asap -- at 32 with 4 babbies you need to be sure. the good news is that it is hard to get als ...
 
Lisa, it is not a good idea to post your email address with pictures of yourself or for members to give you their Email address. The question I asked you was not sarcasm, it may or may not indicate something. We're all adults here.
 
Has anything in particular happened in your life? A stressor?

I do not think your symptoms sound like ALS, and please do not check your tongue all the time, the more you check, the more it will twitch. Check your thyroid levels and have a full bloodwork done to have vitamin deficiencys ruled out would be my advice.
 
Lisa if you wish to delete your email address post say so and I will do it. Too late for you to edit it. Only the mods can after a certain time
 
>Lisa, it is not a good idea to post your email address with pictures of yourself

why, is someone going to kill me? ALS has that under control :).

Seriously, how can publishing my name or email (which is the same as my name) going to put me at risk?

If anyone wants to steal my identity, the ALS goes with it ...
 
>I'm 32 with four kids and I feel like I can't even function sometimes because I'm so scared.
>Do your symptoms persist (or interfere) during intimate moments with your partner?

this forum is very hard to quantify.

Lisa, see a proper ALS specialist. they should have them, even in ahiya, but Eva Feldman has a proper clinic at U of M ...

All joking asode, get help asap -- at 32 with 4 babbies you need to be sure. the good news is that it is hard to get als ...

This - x 1000

You are no good to anyone unless you take care of yourself
 
Max, the risk is your choice... anybody's choice. The are some distinguished contributors to this Forum who post no city, no country and use a screen name other than their real name for a reason. I removed the picture of myself from advice from a friend who is a computer guru. This Forum is viewed by people all over the world, Romania, China, Iran and places where scamming and phishing is a way of life. They may not kill you but with enough personal info they can kill your credit. Your cards could get tapped for just $5 dollars a month looking like a fee for example. You have no idea who Lisa is... EMAIL is the easiest portal to put malware on your computer. There is malware/spyware/viruses today some of the best anti-virus programs do not catch. And... web sites such as this! I'm sure the web master here has employed the better.... but. Nothing is 100%. (My personal opinion concerning personal PCs...any free anti-virus program is exactly "you get what you pay for." Yet, so many go with them.) I know a good bit about computers... I'm only suggesting. Think a lot of ya brother, be careful.
 
Hey, Al --

>Max, the risk is your choice

:)


>I removed the picture of myself from advice from a friend who is a computer guru.

It is always a good idea to be prudent. Back in the 80's I ran system security for Delco Electronics (EDS) and things were the same then. Today the risks are different. In the 90's I used quarantine IDs for all of my accounts. In the 2000's I used VPNs and quarantine systems. I even still run one quarantine system in my home lab :).



>This Forum is viewed by people all over the world, Romania, China, Iran and places where scamming and phishing is a way of life. They may not kill you but with enough personal info they can kill your credit.

WRT identity theft, Bleeding Heart is more dangerous than scammers. Use secure passwords and/or a password server for financial stuff. FWIW my last system password was Fred!6554264613297081#! :).


>I know a good bit about computers... I'm only suggesting. Think a lot of ya brother, be careful

Thanks, if anyone wants to steal my ID, they will be disappointed :).

Max
 
Max is a sweetheart and if I didn't have to worry about having to fight Sandy I'd have to go steal him. I want his dogs too. lol
 
Max, Guess I was kinda preaching to the choir somewhat. I've gone back to writing checks. I have a low limit credit card for anything internet. Same here... they won't get much but it's cleaning up the mess I don't want to deal with. First suspicion the Banks, Credit Bureaus, SS and the IRS have... you're pulling the scam! You have to jump through hoops to prove you're the victim! Anywhooo... guess we're hijacking a Thread. Sorry Mods.
 
Max is a sweetheart and if I didn't have to worry about having to fight Sandy I'd have to go steal him. I want his dogs too. lol

...He is my Bromance....Sandy can come along......she is Hawt!:shock:
 
>guess we're hijacking a Thread. Sorry Mods.

right you are :)

>Sandy can come along......she is Hawt!

dead right!
 
Nikki J, could you go ahead and delete that post with my e-mail address? I wasn't thinking about this being public when I posted. I don't think I posted a picture of myself did I?

My twitching in my limbs is not constant and does not interfere with anything I do. I don't think I have any clinical weakness either. I just feel week-mainly burning muscles after a short amount of time spent doing anything with my arms-like curling my hair or something that shouldn't take a ton of muscle. But I can still do it.

My tongue twitching also does not interfere with anything I do :)
Again, it FEELS like I'm not getting my food down or like I'm not able to talk right but I am actually getting my food down and talking right. It even felt like I was drooling some in the corners of my mouth but when I went to wipe it off there was nothing there! So maybe it's a nerve issue? Or maybe I'm just crazy! Lol :)
 
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