chris88
New member
- Joined
- Apr 18, 2014
- Messages
- 4
- Reason
- Learn about ALS
- Country
- NL
- State
- Utrecht
- City
- Utrecht
Hi all I've been reading for a little bit and am wondering if anyone can give me some tips (as many here). I've done a bit of reading but am still left with a few questions.
I'm male 26yrs fairly thin posture. Used to be 66kg dropped to 60,5 now 62/63.
How fast does the onset of symptoms occur?
Can certain symptoms go away and come back?
Can you have dizzy spells and a feeling of lack of control and a sort of hazy foggy brain feeling?
What does a cramp feel like?
Have any people felt a sort of rushing feeling as initial symptoms?
I just travelled South America and returned home being sick. I have been going to doctors and neurologists atm.
It's hard to indicate when it all started and what to count but here goes.
First sign, don't know if true or false, started twisting my ankles often. Also when walking my knee or hip would hurt. At the moment all my joints grind and crack really badly and sometimes are pretty painful.
Then first real moment of feeling crap was when walking Machu Picchu. Started to suddenly get real dizzy spells and the feeling of loosing control combined with a really weird rushing sensation through my body.
After lying on bed and pushing on this disappeared in two days.
After another 2 weeks I experienced this sensation again but after pushing through and doing hikes it disappeared again.
Then when I came home about another 3/4 weeks later I got it again.
Went to the doctor and the whole circus started.
Was checked in a tropical clinic, all negative.
Also got checked and vacined for rabies as a dog snapt at my finger, negative
Got a CT scan, negative
EMG negative
Lung/heart photo negative
Blood tests, all sorts, negative
Parasite checkup negative
Lumbar punction, first one showed an infection. 8wk later one was clean.
My symptoms (all fluctuating a lot but pretty much stayed for the last 2 months now. During the day when moving around not too bad):
Strange rushing sensation through all of body and weak legs
All started feeling week now.
Really bad cracking joints
Dizziness and cloudy brain
Loss of weight
Difficulty sleeping but disappeared again
Waking up extremely tired, some mornings really need to switch on use of limbs
Twitches all over body (some times they feel deeper now, and as s sort of electrical shock feeling)
Sharp sudden single needle stabbing sensation shooting through body.
Some times a burning sensation on skin
Sort of cramp without actually cramping, like a complaining tense feeling of my muscles.
Sudden feeling of spasm without actual movement of the body.
Some times I feel like breathing is difficult, like I'm not breathing deep enough.
Ringing/rushing ears
I'm not experiencing any of the real typical symptoms though tripping, falling, dropping stuff, slurred although I have lost weight and feel really boney and everything does cost a lot of strength and wake up in mornings absolutely knackered.
Any of you guys any tips?
I'm male 26yrs fairly thin posture. Used to be 66kg dropped to 60,5 now 62/63.
How fast does the onset of symptoms occur?
Can certain symptoms go away and come back?
Can you have dizzy spells and a feeling of lack of control and a sort of hazy foggy brain feeling?
What does a cramp feel like?
Have any people felt a sort of rushing feeling as initial symptoms?
I just travelled South America and returned home being sick. I have been going to doctors and neurologists atm.
It's hard to indicate when it all started and what to count but here goes.
First sign, don't know if true or false, started twisting my ankles often. Also when walking my knee or hip would hurt. At the moment all my joints grind and crack really badly and sometimes are pretty painful.
Then first real moment of feeling crap was when walking Machu Picchu. Started to suddenly get real dizzy spells and the feeling of loosing control combined with a really weird rushing sensation through my body.
After lying on bed and pushing on this disappeared in two days.
After another 2 weeks I experienced this sensation again but after pushing through and doing hikes it disappeared again.
Then when I came home about another 3/4 weeks later I got it again.
Went to the doctor and the whole circus started.
Was checked in a tropical clinic, all negative.
Also got checked and vacined for rabies as a dog snapt at my finger, negative
Got a CT scan, negative
EMG negative
Lung/heart photo negative
Blood tests, all sorts, negative
Parasite checkup negative
Lumbar punction, first one showed an infection. 8wk later one was clean.
My symptoms (all fluctuating a lot but pretty much stayed for the last 2 months now. During the day when moving around not too bad):
Strange rushing sensation through all of body and weak legs
All started feeling week now.
Really bad cracking joints
Dizziness and cloudy brain
Loss of weight
Difficulty sleeping but disappeared again
Waking up extremely tired, some mornings really need to switch on use of limbs
Twitches all over body (some times they feel deeper now, and as s sort of electrical shock feeling)
Sharp sudden single needle stabbing sensation shooting through body.
Some times a burning sensation on skin
Sort of cramp without actually cramping, like a complaining tense feeling of my muscles.
Sudden feeling of spasm without actual movement of the body.
Some times I feel like breathing is difficult, like I'm not breathing deep enough.
Ringing/rushing ears
I'm not experiencing any of the real typical symptoms though tripping, falling, dropping stuff, slurred although I have lost weight and feel really boney and everything does cost a lot of strength and wake up in mornings absolutely knackered.
Any of you guys any tips?