Old 03-17-2014, 12:37 PM #1 (permalink)
New Member
 
Join Date: 2013
City: Vaughn
State: Ontario
Country: CA
Posts: 22
alsornot is on a distinguished road
alsornot alsornot is offline
New Member
Join Date: 2013
City: Vaughn
State: Ontario
Country: CA
Posts: 22
alsornot is on a distinguished road
Default finally a diagnosis

yes! today finally...my family dr. called this morning and said that my 'evoke potential' test came back suggesting a motor neuron on disease, i asked him if it was MS and he suggested that my neurologist explain further...but considering my increased coughing and choking in the last 2 months as well as the spasms in my throat i am sure it is 'the' ALS,
did anyone else have evoke potentials done as part of there tests, this test is in addition to the EMG. any insight would be much appreciated! i don't know weather to shout from the roof top that someone finally believes me and i can say ' i told you so' or be scared that the diagnosis is finally real?
alsornot is offline  
Old 03-27-2014, 06:27 PM #2 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 6,113
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: finally a diagnosis

1) MS is not a motor neuron disease
2) One of the diseases that SSEPs can rule out is MS
3) So I take it from the doc's statements that they have ruled out MS but of course you should follow up with the neuro as suggested

Sorry if you are in our club. With bulbar onset as it sounds like you may have, you may also want to make sure that Kennedy's has been ruled out, when you see the neuro.
lgelb is offline  
Old 03-28-2014, 06:31 AM #3 (permalink)
affected's Avatar
Extremely Helpful Member
 
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,872
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
affected affected is offline
Extremely Helpful Member
affected's Avatar
Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,872
affected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond reputeaffected has a reputation beyond repute
Default Re: finally a diagnosis

I'm sorry, I'm confused, how is what you have written a diagnosis?
affected is offline  
Old 03-28-2014, 07:01 AM #4 (permalink)
Clearwater AL's Avatar
Very Helpful Member
 
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 1,318
Clearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to behold
Clearwater AL Clearwater AL is online now
Very Helpful Member
Clearwater AL's Avatar
Join Date: 2013
City: Central NC
State: NC
Country: US
Diagnosed: 12/2016
Interest: I have been diagnosed with ALS.
Posts: 1,318
Clearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to beholdClearwater AL is a splendid one to behold
Default Re: finally a diagnosis

How did this Thread regenerate? Alsornot's last post was 3/23/14. This post is her post of 3/17/14. Maybe Igelb replied mid-thread from the original?
Clearwater AL is online now  
Old 03-28-2014, 07:09 AM #5 (permalink)
Nikki J's Avatar
Extremely Helpful Member
Forum Moderator
 
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,423
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,423
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: finally a diagnosis

Yes lgelb answered an older thread that was not closed. Since the op has posted that the results were not correct I will close this
Nikki J is offline  
Closed Thread

Tags
als, back, choking, coughing, diagnosis, emg, family, neurologist, scared, spasms, test, tests


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Finally went into the pool mpnatx Other 5 07-24-2015 07:35 AM
Finally got here FeelingTooFarAway Current Caregivers (CALS) 15 02-03-2014 06:27 PM
Finally a dianosis Bfloyd General Discussion About ALS/MND 7 01-14-2014 07:21 PM
Finally, a diagnosis, but its not PLS!..... Danni1000b General Discussion About PLS 5 02-04-2012 12:38 PM
Finally.... AKmom General Discussion About PLS 16 02-13-2011 02:38 PM
Finally got a diagnosis pjm220 People With ALS - "PALS" 11 08-22-2010 11:20 PM
Finally Able To Log In! imanzcan General Discussion About ALS/MND 10 03-14-2010 09:13 PM
Finally ALS diagnosis Just J General Discussion About PLS 7 01-28-2010 08:41 AM
Finally a diagnosis! jmorin General Discussion About MMN 17 05-27-2009 06:15 PM
Finally an appt! sdsyd Do I Have ALS? Is This ALS? 11 11-12-2008 11:24 PM


All times are GMT -5. The time now is 02:04 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016