Drewsmom
Active member
- Joined
- Feb 2, 2014
- Messages
- 68
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- usa
- City
- dixie
I took my husband to the ER on Sunday. He continues to get weaker and is having difficulty walking. Our appointment with the neuromuscular neurologist is not until June and so we were desperate. The ER doctors were great and got him admitted promptly. For the first time we heard those three letters. He ended up with a team of 5 resident doctors and one supervising MD. He had his own "House" team! They also basically felt that he was a clear cut case of ALS. However the EMG did not give them the evidence they need. It was not normal but it also wasn't convincing enough. Yet it ruled out all neuropathies and also did not indicate a myopathy. They did many tests and repeated many that he has already had. His CK level is not elevated nor are other inflammatory markers.
We are still awaiting the results of the muscle biopsy. And he was discharged home with a rolling walker. He also has a lot of "burning" pain in the back of his legs.
Just wondering if our story sounds familiar at all to anyone here and if you have any thoughts.
Thank you
We are still awaiting the results of the muscle biopsy. And he was discharged home with a rolling walker. He also has a lot of "burning" pain in the back of his legs.
Just wondering if our story sounds familiar at all to anyone here and if you have any thoughts.
Thank you