UKGIRL
New member
- Joined
- Feb 19, 2014
- Messages
- 5
- Reason
- Learn about ALS
- Country
- UK
- State
- Nottinghamshire
- City
- Nottingham
So I am a 24 year old who lives at home with parents.
In December I started getting tingled in my limbs. I went to the doctor but she saw no reason to carry out any further tests and sent me away.
Fast forward to now and wow, within the space of two/three weeks I've been hit like a tonne of bricks by this thing.
I went to the hospital yesterday because I couldn't breath properly, felt like something heavy was sitting on my chest. Coughed up saliva from my lung.
On the way there I involuntarily emptied my bladder. I arrive at A&E panicking, tell all this to a doctor who after making me wait for three hours, sends me away with indigestion tablets of all things. Tell her/show her that I have visible atrophy across my stomach that is now almost completely useless and I'm told they are 'stretch marks'.
Mum comes with me to this appointment where I am labelled as nuts/hypochondriac. She believes me and shouts at me for ruining her day.
Wake up this morning with extreme fatigue, dizziness, excessive sweating, flushing hot and cold struggling to hold my head up independently and double vision. My face and cheeks have tightened considerably and my appetite is practically none existent. Go to the doctors and explain no longer in control of my own bowel/bladder movements and all the other symptoms. Unbelievably he sends me away with a form for a blood test.
I have now just been shouted at by my mother after belching up saliva again (3 times tonight). Told I am doing it for attention even though I was genuinely struggling to breath. I'm sat here alone terrified and with no one to turn to.
I don't what to do. Bad enough going through this at only 24 but have a none existence support network. Parents think I'm crazy. Doctors aren't listening and ER turn me away. Where to turn now? The pressure on my chest is unbearable at times and I notice weakening limbs every day.
Please god someone give me some advice/support because I'm completely alone and terrified right now.
In December I started getting tingled in my limbs. I went to the doctor but she saw no reason to carry out any further tests and sent me away.
Fast forward to now and wow, within the space of two/three weeks I've been hit like a tonne of bricks by this thing.
I went to the hospital yesterday because I couldn't breath properly, felt like something heavy was sitting on my chest. Coughed up saliva from my lung.
On the way there I involuntarily emptied my bladder. I arrive at A&E panicking, tell all this to a doctor who after making me wait for three hours, sends me away with indigestion tablets of all things. Tell her/show her that I have visible atrophy across my stomach that is now almost completely useless and I'm told they are 'stretch marks'.
Mum comes with me to this appointment where I am labelled as nuts/hypochondriac. She believes me and shouts at me for ruining her day.
Wake up this morning with extreme fatigue, dizziness, excessive sweating, flushing hot and cold struggling to hold my head up independently and double vision. My face and cheeks have tightened considerably and my appetite is practically none existent. Go to the doctors and explain no longer in control of my own bowel/bladder movements and all the other symptoms. Unbelievably he sends me away with a form for a blood test.
I have now just been shouted at by my mother after belching up saliva again (3 times tonight). Told I am doing it for attention even though I was genuinely struggling to breath. I'm sat here alone terrified and with no one to turn to.
I don't what to do. Bad enough going through this at only 24 but have a none existence support network. Parents think I'm crazy. Doctors aren't listening and ER turn me away. Where to turn now? The pressure on my chest is unbearable at times and I notice weakening limbs every day.
Please god someone give me some advice/support because I'm completely alone and terrified right now.