Antologia
Active member
- Joined
- Sep 7, 2013
- Messages
- 62
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- NE
- State
- ZH
- City
- Amsterdam
Here I am again.
In short, my other thread is to much down now.
-since 2000 I have "heavy arms"
-slow progression since then, in 2007 "heavy fingers"
-in 2010 "heavy/tired tongue"
-in 2012 "heavy legs", shaking when I go downstairs.
-since may 2013 fasciculations and jerks in my whole body
Have been to the neuro, his examination showed no abnormalities. I had brisk reflexes, but he said it could be normal. However he did want me to do an EMG and bloodtest for CK.
Unfortunately, this all had to wait because I recently had an operation. My leg muscles are atrophied because of sitting still for several weeks, so the EMG has to wait until januari, when I will be training again.
Since oct, I'm experiencing some problems with salivation. My mouth is dry, but there is a lot of saliva in my mouth I'm playing with before I swallow. I don't really choke, but sometimes it feels like the swallow reflex isn't coming and sometimes I'm coughing because my saliva is in my throat. It's hard to explain how it feels like.
Most of the time I do something with my tongue, I kind of suck with my tongue against my teeth, to get the saliva at the back of my tongue to swallow. Can't remember I did this before. No drooling, but when I talk, it's hard for me to swallow and I also spit when talking.
So. I'm worried. Not sure if these saliva problems are just in my head (I hope they do, but I think they don't).
It's hard to wait until januari, while having more problems then before.
The twitching and jerks are still there, however I sometimes think it's less then it was during the day. But maybe I'm just getting used to it...?
Does anyone recognizes the problem I describe with the saliva? Dry mouth, no drooling, no choking, assembling saliva and then suck it to get it at the back of your tongue and then you can swallow? I just can't seem to swallow without that sucking thing.
In short, my other thread is to much down now.
-since 2000 I have "heavy arms"
-slow progression since then, in 2007 "heavy fingers"
-in 2010 "heavy/tired tongue"
-in 2012 "heavy legs", shaking when I go downstairs.
-since may 2013 fasciculations and jerks in my whole body
Have been to the neuro, his examination showed no abnormalities. I had brisk reflexes, but he said it could be normal. However he did want me to do an EMG and bloodtest for CK.
Unfortunately, this all had to wait because I recently had an operation. My leg muscles are atrophied because of sitting still for several weeks, so the EMG has to wait until januari, when I will be training again.
Since oct, I'm experiencing some problems with salivation. My mouth is dry, but there is a lot of saliva in my mouth I'm playing with before I swallow. I don't really choke, but sometimes it feels like the swallow reflex isn't coming and sometimes I'm coughing because my saliva is in my throat. It's hard to explain how it feels like.
Most of the time I do something with my tongue, I kind of suck with my tongue against my teeth, to get the saliva at the back of my tongue to swallow. Can't remember I did this before. No drooling, but when I talk, it's hard for me to swallow and I also spit when talking.
So. I'm worried. Not sure if these saliva problems are just in my head (I hope they do, but I think they don't).
It's hard to wait until januari, while having more problems then before.
The twitching and jerks are still there, however I sometimes think it's less then it was during the day. But maybe I'm just getting used to it...?
Does anyone recognizes the problem I describe with the saliva? Dry mouth, no drooling, no choking, assembling saliva and then suck it to get it at the back of your tongue and then you can swallow? I just can't seem to swallow without that sucking thing.
