PRbyJanelle
New member
- Joined
- Jul 28, 2013
- Messages
- 1
- Reason
- Learn about ALS
- Country
- US
- State
- ohio
- City
- Little Hocking
I want to begin this by thanking each of you for the support you obviously give to so many people who may or may not deserve it. I have taken about an hour browsing the forums and so many of you have touched me already.
I am about to list my personal family history with ALS then I want to share some symptoms I am experiencing. As a disclaimer I want to say that no, I haven't spoken to my Dr because I currently don't have life insurance and I don't want to be in the middle of a diagnosis and try to get insurance. Yes, I am researching insurance policies and trying to make the best decisions for my children regardless of ALS's presence.
Family History of ALS:
Grandmother
Uncle
2nd Cousin
Great-Grandmother
Great Uncle
Current Symptoms:
-uncontrollable small twitches/jerks rarely visible externally in arms and legs
-cramps and/or "lines" of pain running down biceps, forearms, thighs, or calves (very sporadic)
-very stiff muscles; if I sit with my leg bent under my bottom for more than 2-3 minutes it takes about 30 seconds to stand on that leg and walk, if I hold my hand in the same position (holding a phone, a dinner plate, a pen) my fingers are stuck in that position for about 30-60 seconds with a "creaky" feeling lasting up to 5 minutes after I am able to move freely
-occasional pain when turning a door knob, cutting food, putting my daughter's hair in a pony tail
-obviously more frequent aches in all four limbs, it almost feels like it takes turns. One arm will ache/twitch in random places, then a leg, then back to the first arm...etc. Occasionally two limbs will be affected at the same time
I am only posting because if these symptoms don't seem like a true concern to those of you who feel this disease everyday I can ease my mind and continue focusing on my family. If any of you feel that these are familiar symptoms to the way this disease begins I want to concentrate my efforts in getting my "ducks in a row" before I seek a diagnosis.
Thank you for your time and God bless every one of you who stare this disease in the face and fight it everyday!
I am about to list my personal family history with ALS then I want to share some symptoms I am experiencing. As a disclaimer I want to say that no, I haven't spoken to my Dr because I currently don't have life insurance and I don't want to be in the middle of a diagnosis and try to get insurance. Yes, I am researching insurance policies and trying to make the best decisions for my children regardless of ALS's presence.
Family History of ALS:
Grandmother
Uncle
2nd Cousin
Great-Grandmother
Great Uncle
Current Symptoms:
-uncontrollable small twitches/jerks rarely visible externally in arms and legs
-cramps and/or "lines" of pain running down biceps, forearms, thighs, or calves (very sporadic)
-very stiff muscles; if I sit with my leg bent under my bottom for more than 2-3 minutes it takes about 30 seconds to stand on that leg and walk, if I hold my hand in the same position (holding a phone, a dinner plate, a pen) my fingers are stuck in that position for about 30-60 seconds with a "creaky" feeling lasting up to 5 minutes after I am able to move freely
-occasional pain when turning a door knob, cutting food, putting my daughter's hair in a pony tail
-obviously more frequent aches in all four limbs, it almost feels like it takes turns. One arm will ache/twitch in random places, then a leg, then back to the first arm...etc. Occasionally two limbs will be affected at the same time
I am only posting because if these symptoms don't seem like a true concern to those of you who feel this disease everyday I can ease my mind and continue focusing on my family. If any of you feel that these are familiar symptoms to the way this disease begins I want to concentrate my efforts in getting my "ducks in a row" before I seek a diagnosis.
Thank you for your time and God bless every one of you who stare this disease in the face and fight it everyday!