texastracy
Senior member
- Joined
- Jul 27, 2013
- Messages
- 500
- Reason
- PALS
- Diagnosis
- 09/2013
- Country
- US
- State
- TX
- City
- Acuff
In 1973 my maternal grandmother passed away from ALS. I think I have always had a fear of this being a diagnosis I would recieve.
Luckily, I have been under the care of a neurologist for 2 years, because of another problem. So I was able to go see him with just a phone call.
I have been having cramps and twitches for about a year, though now the cramps are gone and the twitches are almost gone. m In April, I noticed my left had looked strange when I folded my them into my palm. Also my first finger won't bend down like the one on the right hand. I can bend the finger to wave with all four fingers, but not by itself. I have always had bony looking hands, with big bumps on my wrist from the outer bone. I have trouble buttoning and zipping things, but only in the
I have had a Nerve Conduction Velocity test. They did both arms, right leg, and my neck and back. Next Weds. 7/31 I am having a spinal tap and an MRI of my head, neck, and back.
My neuro says not to give up hope, that it could be a motor neuropathy, which is treatable and closely mimics ALS.
I just turned 50. I have a wonderful husband and two children, 20 and 24. I am stone cold terrified. I am now taking anti-anxiety meds to control the panic attacks I've been having.
My EMG. It definitly was a good one, since originally they were only doing a MRI and just added the spinal tap.
It showed fibs in 6 of 12 places they tested, all +1 except for one +2. In the PSW column there were 7 of 12 normals, 3 of the +2 and 2 of the +1. I only had 2 spots with fasc. labeled few, all others were none. Ins Act, Amp, Dur, and Ins. Pat were all normal. Poly had 3 of the 3+ of the 12, the rest were normal. Recrt. had 6 of the 12 reduced and the rest were Normal.
Any input you want to give would be helpful.
Tracy
Luckily, I have been under the care of a neurologist for 2 years, because of another problem. So I was able to go see him with just a phone call.
I have been having cramps and twitches for about a year, though now the cramps are gone and the twitches are almost gone. m In April, I noticed my left had looked strange when I folded my them into my palm. Also my first finger won't bend down like the one on the right hand. I can bend the finger to wave with all four fingers, but not by itself. I have always had bony looking hands, with big bumps on my wrist from the outer bone. I have trouble buttoning and zipping things, but only in the
I have had a Nerve Conduction Velocity test. They did both arms, right leg, and my neck and back. Next Weds. 7/31 I am having a spinal tap and an MRI of my head, neck, and back.
My neuro says not to give up hope, that it could be a motor neuropathy, which is treatable and closely mimics ALS.
I just turned 50. I have a wonderful husband and two children, 20 and 24. I am stone cold terrified. I am now taking anti-anxiety meds to control the panic attacks I've been having.
My EMG. It definitly was a good one, since originally they were only doing a MRI and just added the spinal tap.
It showed fibs in 6 of 12 places they tested, all +1 except for one +2. In the PSW column there were 7 of 12 normals, 3 of the +2 and 2 of the +1. I only had 2 spots with fasc. labeled few, all others were none. Ins Act, Amp, Dur, and Ins. Pat were all normal. Poly had 3 of the 3+ of the 12, the rest were normal. Recrt. had 6 of the 12 reduced and the rest were Normal.
Any input you want to give would be helpful.
Tracy