Tiber2011
Member
- Joined
- Jun 21, 2013
- Messages
- 21
- Reason
- Learn about ALS
- Country
- US
- State
- Il
- City
- Chicago
Background: new and stressful job. I'm a 28 year-old male with no other health problems, but with a history of depression plus hyper-mobility in joints. I pray for you all now every day.
1st week of March, had a bad back spasm. Felt like a burning bulge. Went away but left my back feeling sore, than a week later I had spasms and fasiculations in other parts of my torso. Went to ortho doctor, put me on physical therapy,
During physical therapy, I developed pain, especially with hamstrings behind knees. Wouldn't go away. Kept getting worse.
Saw 3 neurologists - had full 3-part back scan on a high-powered machine and brain scan on a brand-new enclosed machine. Had EMG-nerve conduction study. My left leg was fasiculating during the tests. No signs of MS or ALS. Had bloodwork done.
Going to see a 4th (MS specialist) on Tuesday.
Continued to feel some tingling in certain fingers and/or toes, or body parts. Currently I feel like a tingling/snapping in the palms of my hands and bottom of my feet on occasion.
Yesterday, I felt my right pinkie twitch when my arm was extended. Have also felt a snapping in left foot little toe.
Have felt tongue twitch only twice, over 2 months ago. I was nervous those days, though. My legs still feel hot and heavy with burning pain sensations, especially after I start my day and get up.
However, I can walk. I've carried a big box straight up over my head with arms outstretched just to see if I can on Sunday. I even tried running down my driveway, and I could as of Sunday.
Now, 6 weeks after PT, it hurts to exercise my left left and the right sometimes is sore. I get stiff, achy and weak feelings, especially while lying down or standing. I can't really stand up in one position for more than 3 minutes because then I feel a tight, painful feeling behind the knee and in the calf. It's like a shin splint with pain in the thigh.
I can sit and feel relatively ok. I cannot sleep the whole night through. I cat nap. I sleep on my back - might irritate an arm and make it spastic.
Went to the last neurologist; one of the best neuromuscular in the city at a University hospital. He did autonomic tests on me and stated I "probably" have "small fiber neuropathy." He said he ruled out MS and ALS, too. He believes I have Elhers Danloss.
My right eyelid has been twitching a lot through this. I've had floaters in my eyes since I was a very little boy, but they seem to have gotten a little worse lately. Went to my regular ophthalmologist and another, both didn't mention anything about neuro diseases and said I don't have RD.
I usually sleep on my back now. Last night, I slept on my left side, and I woke up with my right thigh in pain. I did an MRI of my left knee this Tuesday. I also sometimes feel tightness in the armpit regions, and occasional achy pain in upper arms and forearms. Knees and ankles snap a lot.
I have felt spastic tightness in thighs and arms, but that's not always present. I still get fasiculations in calves and front of legs, and occasionally in the shoulder area. Once, while looking at my right hand on the mouse of a computer, I saw my middle finger seeming to move sideways on its own.
I talk fast now, sometimes choose the wrong word or blend a word, but I can eat and drink.
I get a neuropathy-style burning pain in the right foream. Sometimes my left foot tingles.
When I sit down, it feels like I'm sitting on my pelvic bones now.
What could make my arms feel tight and legs in pain? MS? Stress? Hypochondria? I don't do any physical activity lately for fear of pain in the legs.
Should I do another brain and back MRI? Another EMG?
1st week of March, had a bad back spasm. Felt like a burning bulge. Went away but left my back feeling sore, than a week later I had spasms and fasiculations in other parts of my torso. Went to ortho doctor, put me on physical therapy,
During physical therapy, I developed pain, especially with hamstrings behind knees. Wouldn't go away. Kept getting worse.
Saw 3 neurologists - had full 3-part back scan on a high-powered machine and brain scan on a brand-new enclosed machine. Had EMG-nerve conduction study. My left leg was fasiculating during the tests. No signs of MS or ALS. Had bloodwork done.
Going to see a 4th (MS specialist) on Tuesday.
Continued to feel some tingling in certain fingers and/or toes, or body parts. Currently I feel like a tingling/snapping in the palms of my hands and bottom of my feet on occasion.
Yesterday, I felt my right pinkie twitch when my arm was extended. Have also felt a snapping in left foot little toe.
Have felt tongue twitch only twice, over 2 months ago. I was nervous those days, though. My legs still feel hot and heavy with burning pain sensations, especially after I start my day and get up.
However, I can walk. I've carried a big box straight up over my head with arms outstretched just to see if I can on Sunday. I even tried running down my driveway, and I could as of Sunday.
Now, 6 weeks after PT, it hurts to exercise my left left and the right sometimes is sore. I get stiff, achy and weak feelings, especially while lying down or standing. I can't really stand up in one position for more than 3 minutes because then I feel a tight, painful feeling behind the knee and in the calf. It's like a shin splint with pain in the thigh.
I can sit and feel relatively ok. I cannot sleep the whole night through. I cat nap. I sleep on my back - might irritate an arm and make it spastic.
Went to the last neurologist; one of the best neuromuscular in the city at a University hospital. He did autonomic tests on me and stated I "probably" have "small fiber neuropathy." He said he ruled out MS and ALS, too. He believes I have Elhers Danloss.
My right eyelid has been twitching a lot through this. I've had floaters in my eyes since I was a very little boy, but they seem to have gotten a little worse lately. Went to my regular ophthalmologist and another, both didn't mention anything about neuro diseases and said I don't have RD.
I usually sleep on my back now. Last night, I slept on my left side, and I woke up with my right thigh in pain. I did an MRI of my left knee this Tuesday. I also sometimes feel tightness in the armpit regions, and occasional achy pain in upper arms and forearms. Knees and ankles snap a lot.
I have felt spastic tightness in thighs and arms, but that's not always present. I still get fasiculations in calves and front of legs, and occasionally in the shoulder area. Once, while looking at my right hand on the mouse of a computer, I saw my middle finger seeming to move sideways on its own.
I talk fast now, sometimes choose the wrong word or blend a word, but I can eat and drink.
I get a neuropathy-style burning pain in the right foream. Sometimes my left foot tingles.
When I sit down, it feels like I'm sitting on my pelvic bones now.
What could make my arms feel tight and legs in pain? MS? Stress? Hypochondria? I don't do any physical activity lately for fear of pain in the legs.
Should I do another brain and back MRI? Another EMG?