Merepage
Active member
- Joined
- Dec 26, 2012
- Messages
- 54
- Reason
- Learn about ALS
- Country
- US
- State
- PA
- City
- Center Valley
Well... I have not posted for 2 1/2 months...Thank you all for listening..Just trying to live with whatever I have and trust EMG's etc. Twitching since Sept 2012. I pass strength tests but find walking and climbing stairs harder every week. Can still jump up stairs with much more effort. Can walk on heels..Toes curl under when stroked..Diagnosed with small fiber neuropathy which hopefully explains why my feet feel like I have a ball of socks under them. So I am 8 months into this and I still feel mild progression of all symptoms.. I feel like my gait is getting weird, muscles tight in back, legs etc per physical therapist...Do any of this seem like a slow progressing ALS? I guess I need to trust the EMG from March and hope to get to 1 year still walking...Im scared and frustrated. Is my only option to wait and see?
Any encouraging words welcome.
Any encouraging words welcome.