als at 20

[banid]

hi
im in my 20s and experiencing some strange symptoms
s
7 month ago I started feeling weak in my neck that caused my head to shake while I was trying to keep it in a certain position,I tought it is a kind of essential tremor that I had for more than 5 years in my hands and I was very worried about it...after a week I started twitching in my calves and in a week or two it progressed to my entire body,I had some other issues beside my twitching including fatigue, teeth chattering with my heartbeat, jaw and tongue fatigue...after 5 months of twitching with no weakness I was becoming sire that im suffering bfs but a day I experienced weakness in my right leg,then I looked at my legs, my right calf was 13.4 but muy left one was 13.9, and when I contract ed my legs there was a dent in outer side of my right knee, I immediately went to my neuro but the exams was fine and emg was absolutely normal as wright told me,after that I went to 4 other neuros but they told me im fine!
but im sure that I have weakness in my right leg, in my ankle knee and every muscles of that leg! I have a hard time walking and I feel like my right leg is heavier than the other...the second emg was normal too
beside of the weakness in my right leg I have difficulty swallowing,I feel every thing I eat or drink in the first part of my esophagus
do you think I have als? is it the onset symptoms of clinical weakness?
thank you so much

 

[vickim]

I am not trying to sound mean but have you posted here before under another user name? If this is your first post how can you have already talked to "wright" about your symptoms?

 

[banid]

yes I have...my last accout was banned

 

[vickim]

I thought you sounded familiar. Why are you determined to have als? YOur fear and anxiety are making you sicker. You have been told by numerous people that you are fine and this included neruo drs. You need to seek counceling and get some meds. You were banned for a reason.

I am so sorry you can't let go of this. I hope you get the help you need. But I don't think you will find it here.

 

[banid]

yes you are right, but im under medication for my anxiety and im alot better, but mu physical situation is not any better if its not worsening...I have read lots of articles on this website that people had several normal emg s and then finally get diagnosis.
I have read the stories of people who have been told that every thing is just in there head but have been diagnosed after 2 or 3 years...and I think im like them!
I used to play tennis for 3 hours without any tiredness but now my normal walking is struggling...there should be sth wrong with me and it should have a name, but when im told that its nothing by drs I think im one of those who are diagnosed very late
thank you so much dear vicki

 

[vickim]

Then you need to look at something else. YOu may have a medical illness other than anxiety. But the odds of having als are against you. You have been to what 6 neuros? They all can't be wrong. Those are odds are against you too. For your own piece of mind you have to give up the als diagnosis. You need to look elsewhere.

 

[banid]

what can I look for? bfs? I think its not like bfs...you know I cant even describe how my leg feels, it's neither fatigue nor weakness...I dont know what should I look up about my condition except als

 

[ottawa girl]

Since half a dozen specialists and folks here have repeatedly told you that ALS is not on the menu, why do you persist in trying to order it?

Step away from yourself a moment. Ask yourself if your behaviour sounds even remotely close to normal healthy behaviour? How many friends do you have? Do you spend a lot of time alone with your thoughts? What do your parents advise you? What do you do for fun in your town called aaaaaa?

On the other hand, maybe you'll be proven right.

I hope not. ALS is no picnic and it's fatal.

 

[vickim]

You shouldn't be looking up anything. Go to the dr(s). They will tell you again and again that you are fine. You have made yourself sick, you have convinced yourself there is something wrong. No one here is going to be able to change your mind. I am not going to post to you any more. You won't listen, so it is a waste of my time. I am so sorry you are so ill. I hope you find a way to help youself.

 

[Alyoop]

I vote for senile dementia.