Old 04-02-2013, 07:35 PM #1 (permalink)
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Default Update post-neuro

so, neuro said all my tests came back "absolutely normal", including emg's done 2 months ago (which i already knew). he tested my knee reflexes today and said they were a bit "brisk" but i told him i hadnt taken my benzo's yet today and he said thats probably why. anyways, his working diagnosis is bfs, but he referred me to a neuro who specializes in movement disorders so it looks like its time for more doctors appointments. he was interested in the fasciculations in my face and perineum, and i think thats what prompted him to refer me to the specialist.

just figured id let yall know what was up

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Old 04-02-2013, 08:00 PM #2 (permalink)
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Default Re: Update post-neuro

I am glad its is not als, bfs is annoying but treatable. Good luck. Peace and best wishes.
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Old 04-02-2013, 08:12 PM #3 (permalink)
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Default Re: Update post-neuro

thanks vickim ^.^ ill let you know if anything develops with the movement-disorder neuro.
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Old 04-02-2013, 08:29 PM #4 (permalink)
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Default Re: Update post-neuro

I just love reading good news! Anything but ALS is good news in my book!

Truly thrilled for you.

Don't be a stranger -
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Old 04-02-2013, 08:36 PM #5 (permalink)
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Default Re: Update post-neuro

Wonderful news! Obviously it would be even wonderfuller if all the symptoms went away, so I have my fingers crossed for you
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Old 04-03-2013, 04:15 PM #6 (permalink)
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Default Re: Update post-neuro

im trying a gluten-free diet starting today because Celiac runs in my family. could be that this is all from a gluten allergy. ill let yall know how i make out

thanks for the continues support everyone!
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Old 04-03-2013, 04:26 PM #7 (permalink)
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Keep us posted. Good luck!
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Old 04-08-2013, 10:47 AM #8 (permalink)
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Default Re: Update post-neuro

Let us know if the movement disorder neuro comes up with anything. I have that same "smile tremor" that you mentionned and the same thing in my legs and shoulder, my neuro wasnt concerned about this very much.
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