Old 02-19-2013, 12:43 PM #1 (permalink)
New Member (Say Hi)
 
Join Date: 2013
City: Fargo
State: North Dakota
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 9
anxiousmomof4 is on a distinguished road
anxiousmomof4 anxiousmomof4 is offline
New Member (Say Hi)
Join Date: 2013
City: Fargo
State: North Dakota
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 9
anxiousmomof4 is on a distinguished road
Default Terrified that I have als...please respond

Since Christmas I have been having the strangest symptoms which have me believing that I'm going to be diagnosed with ALS. My left arm and leg have a very strange feeling that I can't really describe other than saying that they feel weak. I have no problems lifting or doing daily tasks which leads me to believe that it's just perceived....however, can't ALS start with weakness rather than actual loss of function? I have noticed that the feeling will come & go but I'll have it for a week or 2 & then it will go away for a few days (or maybe I start focusing on other symptoms & forget that arm/leg?) My other issue is more of a bulbar ALS question. I honestly feel like I'm stumbling over my words or slurring letters together. My husband says that he hasn't noticed anything but it's driving me crazy. I've also noticed that my lips start to twitch if I've been talking or smiling more than normal & I've also had a few issues with swallowing food. Once in awhile it feels like dry foods will get stuck after I swallow. Almost like the muscle isn't strong enough to push it all the way down. Do these things sound like ALS? I have pretty serious health anxiety & I'm having trouble functioning or thinking of anything other than these symptoms that have me terrified.
anxiousmomof4 is offline  
Old 02-19-2013, 03:42 PM #2 (permalink)
vickim's Avatar
Extremely Helpful Member
 
Join Date: 2012
City: aaaa
State: hmm
Country: US
Diagnosed: 03/2012
Interest: I am a friend of someone with ALS/MND.
Posts: 2,263
vickim is on a very distinguished roadvickim is on a very distinguished road
vickim vickim is offline
Extremely Helpful Member
vickim's Avatar
Join Date: 2012
City: aaaa
State: hmm
Country: US
Diagnosed: 03/2012
Interest: I am a friend of someone with ALS/MND.
Posts: 2,263
vickim is on a very distinguished roadvickim is on a very distinguished road
Default Re: Terrified that I have als...please respond

Have you gone to the doctor?
vickim is offline  
Old 02-19-2013, 04:42 PM #3 (permalink)
New Member (Say Hi)
 
Join Date: 2013
City: Fargo
State: North Dakota
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 9
anxiousmomof4 is on a distinguished road
anxiousmomof4 anxiousmomof4 is offline
New Member (Say Hi)
Join Date: 2013
City: Fargo
State: North Dakota
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 9
anxiousmomof4 is on a distinguished road
Default Re: Terrified that I have als...please respond

I have seen my family doctor but he basically did some reflex tests & I also had an MRI. All was normal. I'm supposed to see Neuro in 2 weeks but was hoping that others have had experiences like mine that turned out to be nothing.
anxiousmomof4 is offline  
Old 02-19-2013, 04:54 PM #4 (permalink)
vickim's Avatar
Extremely Helpful Member
 
Join Date: 2012
City: aaaa
State: hmm
Country: US
Diagnosed: 03/2012
Interest: I am a friend of someone with ALS/MND.
Posts: 2,263
vickim is on a very distinguished roadvickim is on a very distinguished road
vickim vickim is offline
Extremely Helpful Member
vickim's Avatar
Join Date: 2012
City: aaaa
State: hmm
Country: US
Diagnosed: 03/2012
Interest: I am a friend of someone with ALS/MND.
Posts: 2,263
vickim is on a very distinguished roadvickim is on a very distinguished road
Default Re: Terrified that I have als...please respond

Yes there have been many but let the doctor tell you that there is nothing wrong but anxiety. Alot of them will not believe the dr and eventually they come to realize that it was anxiety. Some don't. I am sending prayers that you are fine and get to move on with your life.
I wish you peace.
vickim is offline  
Old 02-19-2013, 05:48 PM #5 (permalink)
hjlindley's Avatar
Senior Member
 
Join Date: 2011
City: Richmond
State: VA
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 764
hjlindley is on a distinguished road
hjlindley hjlindley is offline
Senior Member
hjlindley's Avatar
Join Date: 2011
City: Richmond
State: VA
Country: US
Diagnosed: 10/2011
Interest: I have been diagnosed with ALS.
Posts: 764
hjlindley is on a distinguished road
Default Re: Terrified that I have als...please respond

Once the weakness comes, it doesn't go, it progresses. Every patient is different, but there is no sensory involvement in this disease. My has been slow and relentless. It started with weakness in my dominant hand and is now taking my other hand. All of this has taken about 4 years. See the neurologist, and treat anxiety. It just doesn't sound like ALS. But I am not a doctor. Take a deep breath and remember that anxiety produces very strong chemicals
hjlindley is offline  
Old 02-19-2013, 08:06 PM #6 (permalink)
momap53's Avatar
Very Helpful Member
 
Join Date: 2011
City: EGA
State: GA
Country: US
Diagnosed: 05/2011
Interest: I have been diagnosed with ALS.
Posts: 1,644
momap53 is on a distinguished road
momap53 momap53 is offline
Very Helpful Member
momap53's Avatar
Join Date: 2011
City: EGA
State: GA
Country: US
Diagnosed: 05/2011
Interest: I have been diagnosed with ALS.
Posts: 1,644
momap53 is on a distinguished road
Default Re: Terrified that I have als...please respond

Speech issues in ALS are usually noticed by friends and family members first. Some may think that you've been drinking.

Thin liquids are usually the first things to cause problems in ALS , not dry foods.

Many of us with limb onset had no prior "feeling" of weakness. We had actual clinical weakness. We could no longer do something that we previously could do.

Hope. This helps you let go of some of your anxiety.
momap53 is offline  
Old 02-20-2013, 10:38 PM #7 (permalink)
New Member
 
Join Date: 2012
City: San Rafael
State: California
Country: US
Interest: I dont know what I have, but I hope its not ALS
Posts: 26
esjcollege08 is an unknown quantity at this point
esjcollege08 esjcollege08 is offline
New Member
Join Date: 2012
City: San Rafael
State: California
Country: US
Interest: I dont know what I have, but I hope its not ALS
Posts: 26
esjcollege08 is an unknown quantity at this point
Default Re: Terrified that I have als...please respond

Wow our symptoms are strikingly similar...and I too am on the fence, worried I have this terrible illness.

My swallowing has recently become an issue. I can get food to the back of my mouth, but it takes a few times to initiate a gulp. It's like there's a hesitation to swallow. Once the food starts to go down, it feels like it gets stuck and doesn't go down all the way. I have also noticed I've been stuttering more and it's harder to formulate sentences.

I am worried of course, but if I had to guess, I would say that we are both negative for the disease. Please let me know how you're doing. I am seeing a neurologist tomorrow. You can pm me
esjcollege08 is offline  
Old 02-21-2013, 09:41 AM #8 (permalink)
New Member (Say Hi)
 
Join Date: 2013
City: Fargo
State: North Dakota
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 9
anxiousmomof4 is on a distinguished road
anxiousmomof4 anxiousmomof4 is offline
New Member (Say Hi)
Join Date: 2013
City: Fargo
State: North Dakota
Country: US
Interest: I am interested in learning about ALS/MND.
Posts: 9
anxiousmomof4 is on a distinguished road
Default Re: Terrified that I have als...please respond

Thanks for responding escollege08. I'm not sure how to private message! You have a neuro tomorrow? My appt. isn't until the 4th of March & it feels like an eternity away. I'm having an endoscopy tomorrow morning to possibly determine the cause of my swallowing issue. Still absolutely terrified of ALS. I can't believe how consuming the thought of it can be. Praying that your neuro appt. goes well. Keep me posted!
anxiousmomof4 is offline  
Closed Thread

Tags
als, als?, anxiety, arm, bulbar, bulbar als, christmas, diagnosed, driving, food, go away, health, muscle, problems, swallowing, symptoms, twitch, weakness


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
I think I have als. Please respond. Kaylak Do I Have ALS? Is This ALS? 9 10-17-2015 03:32 AM
Please Respond to a Worried Mom lovely1 Do I Have ALS? Is This ALS? 9 02-12-2015 06:27 PM
Please respond if this indicates ALS jcharlotte Do I Have ALS? Is This ALS? 12 09-18-2014 02:58 PM
Someone please respond! MLP123 Do I Have ALS? Is This ALS? 7 11-22-2013 01:43 PM
Don't blame u if you don't respond. Bfloyd Do I Have ALS? Is This ALS? 7 11-11-2013 12:07 AM
how would you respond? seaside Rants & Raves 8 09-15-2013 03:48 PM
Ssep, egg, ncv no neddle..Please respond ! Concearnedyoungfemale Do I Have ALS? Is This ALS? 11 09-28-2012 10:06 PM
How does your dog respond? SueG Stories of Hope 34 04-17-2012 10:39 PM
How people respond joni51 General Discussion About ALS/MND 26 01-15-2011 08:51 AM
Please Respond Sammantha Do I Have ALS? Is This ALS? 10 06-19-2008 04:23 PM


All times are GMT -5. The time now is 03:51 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016