MKM7
New member
- Joined
- Jan 31, 2013
- Messages
- 8
- Reason
- Learn about ALS
- Country
- US
- State
- PA
- City
- Small City
Hi Everyone,
I am writing, because at this point, I don't know where else to turn. I am trying to remain positive, but truly can't. After recently suffering a miscarriage, I started getting tingly/itchy feet with shooting pains in my feet and hands. (nothing to do with miscarriage). Soon after I started getting muscle twitches, mostly from the knee down. I have been experiencing them elsewhere, but not quite as much as my legs. I noticed during my pregnancy that my legs were weak, especially my left and I suddenly realized that it's way weaker than the other. I had just been chalking it up to pregnancy tiredness. I have completely lost my appetite (and I love to eat!) and the most concerning thing is that I have an incredible urgency to go to the bathroom every five minutes. I also barely have the energy to walk the dog, and I am typically an active athlete. I have been checked for everything possible (all clear) and even saw a neurologist today. The neurologist said that there was nothing that points to ALS at this point and that it was probably a virus affecting my nervous system. I have never even heard of such a thing. I am so grateful to have clean tests, but it doesn't give me any explanation for things. I feel as though I am just sitting here waiting for my left leg to get even weaker, or for something else to happen. I feel so helpless. My husband and mom have been with me every step of the way and I am grateful. I feel as though I am trying to be strong for them at this point, all the while feeling like I am facing the inevitable diagnosis. I would appreciate any advice you can give and hope I haven't offended anyone in asking for help. I have been reading so many of these posts and am in awe of the strength and camaraderie here. Thank you!
I am writing, because at this point, I don't know where else to turn. I am trying to remain positive, but truly can't. After recently suffering a miscarriage, I started getting tingly/itchy feet with shooting pains in my feet and hands. (nothing to do with miscarriage). Soon after I started getting muscle twitches, mostly from the knee down. I have been experiencing them elsewhere, but not quite as much as my legs. I noticed during my pregnancy that my legs were weak, especially my left and I suddenly realized that it's way weaker than the other. I had just been chalking it up to pregnancy tiredness. I have completely lost my appetite (and I love to eat!) and the most concerning thing is that I have an incredible urgency to go to the bathroom every five minutes. I also barely have the energy to walk the dog, and I am typically an active athlete. I have been checked for everything possible (all clear) and even saw a neurologist today. The neurologist said that there was nothing that points to ALS at this point and that it was probably a virus affecting my nervous system. I have never even heard of such a thing. I am so grateful to have clean tests, but it doesn't give me any explanation for things. I feel as though I am just sitting here waiting for my left leg to get even weaker, or for something else to happen. I feel so helpless. My husband and mom have been with me every step of the way and I am grateful. I feel as though I am trying to be strong for them at this point, all the while feeling like I am facing the inevitable diagnosis. I would appreciate any advice you can give and hope I haven't offended anyone in asking for help. I have been reading so many of these posts and am in awe of the strength and camaraderie here. Thank you!