Kathylund
Active member
- Joined
- Aug 28, 2011
- Messages
- 87
- Reason
- Learn about ALS
- Country
- US
- State
- Ct
- City
- Middletown
I see so many posting about limboland so thought I would chime in.
I have had symptoms for 1 1/2 yr, pretty much the same, my leg has some atrophy, it's gotten a little worse but not major, no weakness.
My main problem has been with my mouth. The way I would describe it is trying to talk when it's really cold out and it gets a little difficult. I also have feelings of numbness, that moves around my tongue. I feel like I have difficulty talking, but really only during a conversation. No one else notices anything.
I have been to, last year, 2 neuros, 2 als specialists, ent, family doc, emg, MRI, bloodwork and nothing! Not even a lead of what could be going on.
I do not believe I have als, my problem now, is because when I went to these drs I was in a highly anxious state, telling them I believed I had als, so now when I go to my neuro and my family doc, they kinda think I'm nuts! Hell, i would too. I want to find out what's going on, any ideas from you smart people would be great.
If there is a moral here, if you are undiagnosed, dont do what I did, don't go in there so freaked out telling them you have als, let them do there job.
I have had symptoms for 1 1/2 yr, pretty much the same, my leg has some atrophy, it's gotten a little worse but not major, no weakness.
My main problem has been with my mouth. The way I would describe it is trying to talk when it's really cold out and it gets a little difficult. I also have feelings of numbness, that moves around my tongue. I feel like I have difficulty talking, but really only during a conversation. No one else notices anything.
I have been to, last year, 2 neuros, 2 als specialists, ent, family doc, emg, MRI, bloodwork and nothing! Not even a lead of what could be going on.
I do not believe I have als, my problem now, is because when I went to these drs I was in a highly anxious state, telling them I believed I had als, so now when I go to my neuro and my family doc, they kinda think I'm nuts! Hell, i would too. I want to find out what's going on, any ideas from you smart people would be great.
If there is a moral here, if you are undiagnosed, dont do what I did, don't go in there so freaked out telling them you have als, let them do there job.