Merepage
Active member
- Joined
- Dec 26, 2012
- Messages
- 54
- Reason
- Learn about ALS
- Country
- US
- State
- PA
- City
- Center Valley
Hi everyone.. I have been reading posts for months and finally have the courage to ask for opinion/advice. Here is my short story..Jan 2102 got pertussis.. turned into indigestion..Hit my nervous system in April 2012.. Chronic Thoracic Back pain left of my spine with headache for months. Had some lyme testing..no CDC positive but positive for Ehrlichiosis..Started lyme meds for 4 months with no improvement...August 2012 calf twitching...some "percieved?" weakness.. Neuro appt then EMG on 8/30.. clean...Continued more meds for Lyme.. no improvement.. Hyperreflexes at follow up Neuro. Spinal tap clear. Twitching spreads to shoulder, left eyelid, thighs, feet and just about everywhere..Walking compromised but not obvious. Started looking at ALS.. Another EMG Oct 2012..clean....Sinus surgery 12/21..Leg weakness is profound now. Both legs.. I can walk on my heals and toes. Went to GP today and he ordered another EMG. Strength tests fine, but I cant walk across the room without needing to sit down.. Not tripping, just total leg fatigue... I am worried sick (4 boys..love being their mom) Arms fatigued too but can do tasks for a short while...Need to get better or at least get a diagnosis.. One year anniversary of this on 1/1/2013. Feel weaker everyday.. Any input appreciated... ALS? UMD? LMD? Something else? THANK YOU SO MUCH