Old 11-22-2012, 07:19 AM #1 (permalink)
Member
 
Join Date: 2011
City: Mel
State: VIC
Country: AU
Interest: I am interested in learning about ALS/MND.
Posts: 103
fitzroy is on a distinguished road
fitzroy fitzroy is offline
Member
Join Date: 2011
City: Mel
State: VIC
Country: AU
Interest: I am interested in learning about ALS/MND.
Posts: 103
fitzroy is on a distinguished road
Default A vent (update of sorts)

Right, so I can swing a golf club after a fashion on the driving range but I can no longer put on socks, leggings or tights without a Herculean effort. Whatever's happening with me is confusing, confounding and continuous.

The same is becoming true of bottle lids. Not every bottle, but enough times that I've been stumped and having to ask someone else to give it a try. Which they invariably open with comparative ease. Went clothes shopping last week and gave up on anything complex as I was unable to handle the zips and clips. Stretchy clothes feel better anyway. Don't talk to me about fine motor coordination.

My GP has made a recommendation for an occupational therapist. I wouldn't have even considered this two or three months ago. Things aren't dire. I'm able to cope with pretty much everything that's going on but it's becoming a regular and persistent set of symptoms.

I now have an additional doctor in my team for pain management. Didn't want to do it, but another of my doctors pretty much forced it on me. Gabapentin is my 11th med in the current regime. I'm tired of this stuff.

What I'm dreading though is the need to step back into figuring out what's really happening. It's a merry-go-round that is tiring, anxiety and self-doubt inducing with often ambiguous results. I think I need to do it but I'm not looking forward to it, including going back to a neurologist.

Ugh.
fitzroy is offline  
Old 11-22-2012, 07:43 AM #2 (permalink)
vickim's Avatar
Extremely Helpful Member
 
Join Date: 2012
City: aaaa
State: hmm
Country: US
Diagnosed: 03/2012
Interest: I am a friend of someone with ALS/MND.
Posts: 2,263
vickim is on a distinguished road
vickim vickim is offline
Extremely Helpful Member
vickim's Avatar
Join Date: 2012
City: aaaa
State: hmm
Country: US
Diagnosed: 03/2012
Interest: I am a friend of someone with ALS/MND.
Posts: 2,263
vickim is on a distinguished road
Default Re: A vent (update of sorts)

Nobody can blame anyone for an occasional pity party. Its okay for a short time. I call it having a moment. I am sure everyone here can relate. Frustration is the biggest for me. Things I can do and can't. I just have to remind myself that it is a challenge and I will win, if I can't go over I go under or around. Just don't give up. Going to doctors and repeating everything over and over gets old quick but we do what we have to do until we find the right doctor who figures it out. Go ahead and rant you are entitled once in a while, it makes me feel better. Have a great thanksgiving.
vickim is offline  
Old 11-22-2012, 08:20 AM #3 (permalink)
Tokahfang's Avatar
Senior Member
Forum Moderator
 
Join Date: 2010
City: Richmond
State: VA
Country: US
Diagnosed: 07/2009
Posts: 789
Tokahfang has disabled reputation
Tokahfang Tokahfang is offline
Senior Member
Forum Moderator

Tokahfang's Avatar
Join Date: 2010
City: Richmond
State: VA
Country: US
Diagnosed: 07/2009
Posts: 789
Tokahfang has disabled reputation
Default Re: A vent (update of sorts)

Around here, "a vent" is short for "a ventilator". I was very confused by why someone considering a vent was still worried about whether they had ALS or not, heh.
Tokahfang is offline  
Old 11-22-2012, 09:10 PM #4 (permalink)
Member
 
Join Date: 2011
City: Mel
State: VIC
Country: AU
Interest: I am interested in learning about ALS/MND.
Posts: 103
fitzroy is on a distinguished road
fitzroy fitzroy is offline
Member
Join Date: 2011
City: Mel
State: VIC
Country: AU
Interest: I am interested in learning about ALS/MND.
Posts: 103
fitzroy is on a distinguished road
Default Re: A vent (update of sorts)

Sorry for the confusion. I wasn't really ranting about anything in particular, but having a small pity party. Just needed to share some of my frustrations somewhere.
fitzroy is offline  
Closed Thread

Tags
anxiety, back, clothes, confusing, driving, gabapentin, neurologist, pain, symptoms, update, vent


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Poll about the "Vent/No-Vent" Decision. trfogey General Discussion About ALS/MND 22 09-23-2011 03:55 AM
Just a little vent/update.... Robynnblue Do I Have ALS? Is This ALS? 13 06-14-2011 06:44 PM
To vent, or not to vent- that is the question. LizT General Discussion About ALS/MND 135 02-14-2011 05:57 AM
Going Home/Staying in Hospital on a Vent + What is day to day life like on home vent? DavidS Current Caregivers (CALS) 9 01-19-2011 11:48 AM
Just need to vent CAHPAH Current Caregivers (CALS) 16 12-16-2010 09:29 PM
Progression of symptoms - survey of sorts FindlayPALS People With ALS - "PALS" 22 08-25-2010 11:02 AM
just got vent AHands People With ALS - "PALS" 11 02-18-2010 10:10 AM
vent Brentt General Discussion About ALS/MND 2 06-04-2007 05:27 PM
Should he consider a vent? pamwagg Current Caregivers (CALS) 1 10-12-2006 01:19 AM


All times are GMT -5. The time now is 10:49 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016