Persephone
New member
- Joined
- Oct 2, 2012
- Messages
- 2
- Reason
- Learn about ALS
- Country
- US
- State
- Florida
- City
- Beach
Hello to all...I am new to the board. After being pitched to several doctors, my new ENT surgeon told me that I needed to be seen by a neurologist for my issues. I am having slurred speech, difficulty swallowing and chewing. I was told that I needed to be worked up for the possibility of MS, ALS and a brain tumor. No offense, but all these possibilities suck. When I started looking up each one, I realized that I had symptoms that matched each of these, which is probably why he wanted me to be worked up for each one.
I was wondering if anyone had speech as your first symptom. I have problems moving my tongue and starting having a fast downward spiral of swallowing problems. Water comes out my nose if I don't take time to gentle sips. I also have food issues...no ramen noodles, hotdogs, peanut butter, etc for me.
I was wondering if anyone of you had ear issues also. I have ear fullness, pain and ringing and crashing waves which vary in intensity each day. I also have headaches that increase with bending, going to the restroom and increased heart rate. At times I have vomiting with it also. By noon or 1pm, I start feeling noticeably better which is good because I pick up my child from school, shop, homework, etc.
I hope that I have not offended anyone by my questioning. I read thru some of the posts and noticed a trend in people asking if they have ALS without a physician visit. The reason I posted and joined was that I had a doctor tell me that it was a very real possibility. And, like many on the board, I'm scared. It is truly frightening to choke when eating or drinking. Having food stuck is painful and scary too. I sound like I'm drunk, can't move my tongue much and right side and back of tongue is numb. It is also very unnerving to know that thiings are going wrong quickly. I would really just like to know how to manage the issues I'm having. I would like some advice on getting thru the testing, too. I.figured this is the best place for that advice.
I do appreciate you all taking the time to read and help. Thank you
I was wondering if anyone had speech as your first symptom. I have problems moving my tongue and starting having a fast downward spiral of swallowing problems. Water comes out my nose if I don't take time to gentle sips. I also have food issues...no ramen noodles, hotdogs, peanut butter, etc for me.
I was wondering if anyone of you had ear issues also. I have ear fullness, pain and ringing and crashing waves which vary in intensity each day. I also have headaches that increase with bending, going to the restroom and increased heart rate. At times I have vomiting with it also. By noon or 1pm, I start feeling noticeably better which is good because I pick up my child from school, shop, homework, etc.
I hope that I have not offended anyone by my questioning. I read thru some of the posts and noticed a trend in people asking if they have ALS without a physician visit. The reason I posted and joined was that I had a doctor tell me that it was a very real possibility. And, like many on the board, I'm scared. It is truly frightening to choke when eating or drinking. Having food stuck is painful and scary too. I sound like I'm drunk, can't move my tongue much and right side and back of tongue is numb. It is also very unnerving to know that thiings are going wrong quickly. I would really just like to know how to manage the issues I'm having. I would like some advice on getting thru the testing, too. I.figured this is the best place for that advice.
I do appreciate you all taking the time to read and help. Thank you