Waiting
Member
- Joined
- Jul 26, 2012
- Messages
- 25
- Diagnosis
- 08/2012
- Country
- US
- State
- Kansas
- City
- Independence
My husband has been told by his neurologist that he thinks he has Inclusion Body Myositis, primarily based on his muscle biopsy. Prior to that he was leaning toward ALS, but he didn't tell us that until after the biopsy came back. He wants him to have a second opinion at Barns Jewish in St. Louis. We are waiting for the appointment to be set. In the mean time he continues to have fasciculations all over and daily. Some are you can see, some you can't. He has loss of strength in arms, legs, and hands. He has atrophy in his arms most noticable in the triceps. My question is, are fasciculations a symptom of Inclusion Body Myositis? The only thing I'm finding is that "Motor neuron disorders can be distinguished from IBM by the presence of hyperreflexia, cramps, fasciculations and large motor units on EMG". His needle EMG did not detect the fasciculations but they have increased since that time and I have read the the needle EMG doesn't detect fasciculations as well as a non-needle EMG. Any comments would be appriciated.