Hi!...can someone please answer this query

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Kevin1407

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Learn about ALS
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sedona
hi! there everyone

I am an BFS'er diagnosed 4 years back and was under observation for over 2years. Well after that even my neuro was fed up, so we both called it quits.

So my query is regarding this new research paper that was out i dont know exactly who did it or what was the crux of it ,but it did say about following up for over 4-5 years. I think it was after they diagnosed 4 people , though i am not sure.

anyone who has any info regarding this research ?
 
As someone who,has been diagnosed with the same thing, the only thing I've ever been told is to come back if my symptoms change significantly.

You might want to head over to the BFS forum for info.
 
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