I went to St. Louis Wash U Center for Advanced Med last week. VERY good neuro exam by resident and chief of staff, who specializes in ALS part. BOTH said exam - both checked me over - did not indicate ALS. Why then am I on here again?! God only knows. We talked about the fact some are not diagnosed for six months, one year, etc. You get my point! Both said they understood my fears. I had another extensive EMG/NCS (even on arms this time!) and an ultrasound of my nerves and muscles. ALSO, MUCH blood work was done again. Will call back in three weeks for results. I was very pleased with the exams and testing. My diagnosis was small fiber neuropathy. I wished I had asked more about this disease but didn't-ugh. I have searched on the web, but can find out very little on muscle weakness for this condition. And they know of my weakness in my neck, mouth, swallowing, etc. But my clinical exam showed all strength tests were very good. And I CAN still eat major foods. Without choking. But when I seemingly drooled last night (a little from my left side of my mouth, has happened before) it scared me of course. Anyway, sorry to bother you all, but giving an update. On an ALS site, when I have been told no ALS. THANK YOU all! Any comments would be appreciated. Yes, I do see a counselor for my anxiety.
diagnosis 
