Sweetheart, you are very young. ALS just isn't what you have going on. All your issues are sensory. The sensory nerves affect things like tingling, feeling numb or 'off'.
ALS affect motor neurons, which feed muscles. Please believe that this would show abnormality in your clinical exam. If the NCV was negative, that means there is no damage to a nerve, which is also a good thing.
I'm guessing you have not had an EMG (the needles) but nothing in your symptoms seems to warrant one at this time.
Let me add here that even with admitted issues with health anxiety, that does not mean that something systemic is not going on. As Patricia said in your last thread, it almost sounds like auto-immune in nature or even viral.
Sense of smell and taste are NEVER affected by ALS in any shape or form.
My point here is rhat while we all, including your doctors, don't feel ALS is at all even a remote possibility, it doesn't mean something else isn't.
The mind is a powerful complicated part. Psychosomatic is not 'faking it'. It is a psychological response that your mind turns into physical manifestations which you have no conscious comtrol over. It can also be anxiety fed. You have become hyper-aware of your body at this point. Please do follow up with the therapist. It just may help.
I'd also like to mention the possibility of Fibromyalgia. For years, the doctors considered it psychosomatic. It is omly in the last ten years or so that it is taken seriously. It can cause a wide variety of both sensory issues, as well as pain.
If you drink a lot of soda, I suggest trying caffeine free.vcaffiene can cause benign twitches.
If you feel as if you are losing muscle tome,cperhaps you are! If you are not eating properly, the body protects itself. It will take from non-essential things, like muscle,cot nourish the organs.
So, all in all, what I am proposing is the possibility that you have something going on...just NOT ALS.
I live in Orlando. I'd be happy to meet you for lunch to talk. Even hypochondriacs can and do become ill.
Proper nutrition and proper exercise are essential to feeling good. Please take care of yourself and try not to worry about ALS anymore. Many of your symptoms, even the ones in your legs and the taste can be side effects of the Bell's Palsy. Did the doctor not explain that to you?
Bells palsy can also mimic Lyme disease. Honestly, my thoughts are that your symptoms are very real and have been caused by the Bells Palsy. It's a falicy that it only causes the facial paralysis. To ease your mind, do some research on it.
