A while ago I posted some concerns about my swallowing problems, and then twitching.
Last year I started to have swallowing issues with solids, which have not gone away. Swallowing study was not conclusive as I did not proceed past the liquids. First EMG showed fasiculations in lower limbs, but nothing else. Second EMG 3 months later had some "minimal neuropathic changes" with fasiculations.
Things have remained the same on the swallowing (unable to swallow solids), and the fasiculations have increased particularly in my lower limbs (feels like worms under the skin in my left lower leg continually), but are present at times in all sorts of areas. I get cramps in my feet regularly. Symptoms started around 12 months ago, though I had terrible leg cramps occassionally in the night before this time. The only positive test so far has been Voltage Gated Potassium which was at a level of 115 (threshold is 100 I believe).
All seemed to point to a Cramp Fasiculation Syndrome (?), but this week I/we noticed that my right calf muscle area is noticeably smaller than my left.
I have some weakness but I'm put that down to being thin from not eating. I am still able to walk, even if a bit unsteady.
I've had two emg's over the past 12 months, the last one in March. Apart from confirming the fasiculations, I was told nothing significant was shown.
Upon noticing the apparent atrophy(?) I looked at the details of this emg and see some readings on the "right Tibialis-FHB Anterior" and "Right Gastroc (med)" that don't say "normal" as the other readings do.
On the Needle EMG section it says
Right Tibialis Anterior: "Mild Inactive Neur.." Fasics is "+" Dur is "+" Amp is "+".
Right Gastroc (med): "Mild Inactive Neur.." Fasics is "+" Dur is "+" Amp is "+".
Left Gastroc (med): Fasics is "+"
Right Cervial PSP: "Mild Inactive Neur.." Fasics is "+" Dur is "++" Amp is "+".
There are loads of other readings there for Repetitive Nerve Stimulation tests etc.
The note form the Doctor doing it says there were "minimal neurolopathic changes" in Right Tibialis and Right Gastroc "but other extensive examination carried out including cervial and lumbar paraspinal muscles and genioglossus did not reveal any significant abnormalities".
He goes on to say "There is no support for motor neurone disease or a myopathy. Also there are no features of a peripheral neuropathy, myasthenia gravis, ocular myasthenia or myasthenic syndrome"
I've alerted them to my recent finding which seems to have been missed. I wonder if anyone could offer any advice on this. My initial concerns were ALS, which the initial tests seem to have ruled out. I wonder however if a beast is slowly revealing itself.
I'd be most grateful for any advice.