Ohno:(
New member
- Joined
- Jun 20, 2012
- Messages
- 1
- Reason
- Learn about ALS
- Country
- US
- State
- MA
- City
- Centerville
Hello all,
For the past 1 1/2-2 months I have been having very uncomfortable symptoms and I am still very worried about them..
When it first started, I was trying to sleep one night and I had severe Testicular Pain. I went to the ER and they did an ultrasound that came up clean. Over that next week, the pain persisted. I went to 3 different hospitals and they could not get a diagnosis. They assumed it was an infecction and sent me home with anit-biotics and pain killers. The pain (in my lower groin/abdomine/testicles) subsided for a few days. Then i started noticing pain in my arms and legs. The pain was kind of like a shooting pain from my forarms down to my thumbs, and from my upper thighs down to my feet. I went back to my doctor and he checked me out and noticed something was causing pain in my stomach (right side), and sent me to get an CT scan to make sure it was not appendicitis. At the same time (within the same couple of days), I had a bloodtest to check for lyme and other things. During the follow up, everything came back normal. At this time the pain was still very excruciating, and I was also very nervous (I have bad anxiety). He put me on an anti-anxiety/depressiant called Citalopram.
Over the past few weeks (still taking the anti-anxiety meds), my symptoms have beed leaning more towards something along the lines of ALS or MS. I have jaw/gum/tooth pain, blurred vision (mostly in my right eye), neck stiffness, weakness and pain in my hands, feet, arms and legs,.. I am constantly having muscle twitches in my calfs, knees and upper thighs (mostly my right leg/foot), lately trouble swallowing and somewhat slurred speech, and I sometimes have trouble holding on to things and I've noticed I'm stubbling or tripping much more often then before. These symptoms cause insomnia and I average about 3-5 hours of sleep per night, but it's just really hard for me to sleep with all of this going on, especially because it gets worse at night time or before I go to bed.
About a week ago, I went to my doctors office and saw a PA. I had told her my symptoms (which are persisting to get worse), and also my fear of ALS. She looked at me and said "You don't have ALS." I did not know what to think because I know her eyes are not an EMG test. She said I needed a lifestyle change and told me to take Alive (which is not helping at all and to be honest, acetominephines((sp?)) hurt my stomach lately). The past few days, the twitching/spasms have gotten much more noticeable, and I can barely get out of bed in the morning. I can barely do a pushup anymore and I am always fatigued. I have an MRI of my spine or back (not sure if it's upper or lower) to check if anything is wrong in that area, which I strongly believe there won't be. The stress and anxiety/worry I have from all this is basically consuming my life and I feel hopeless.
I'm 17, turning 18 in a few months, and I'm very worried about what's wrong with me.
I'm sorry for writing so much, and also sorry if I sound stupid, I Just don't know what else to do.
I would really appriciate some feedback/input and I know I can't be diagnosed over the internet, but this forum seems very supportive .
Thanks a bunch.
For the past 1 1/2-2 months I have been having very uncomfortable symptoms and I am still very worried about them..
When it first started, I was trying to sleep one night and I had severe Testicular Pain. I went to the ER and they did an ultrasound that came up clean. Over that next week, the pain persisted. I went to 3 different hospitals and they could not get a diagnosis. They assumed it was an infecction and sent me home with anit-biotics and pain killers. The pain (in my lower groin/abdomine/testicles) subsided for a few days. Then i started noticing pain in my arms and legs. The pain was kind of like a shooting pain from my forarms down to my thumbs, and from my upper thighs down to my feet. I went back to my doctor and he checked me out and noticed something was causing pain in my stomach (right side), and sent me to get an CT scan to make sure it was not appendicitis. At the same time (within the same couple of days), I had a bloodtest to check for lyme and other things. During the follow up, everything came back normal. At this time the pain was still very excruciating, and I was also very nervous (I have bad anxiety). He put me on an anti-anxiety/depressiant called Citalopram.
Over the past few weeks (still taking the anti-anxiety meds), my symptoms have beed leaning more towards something along the lines of ALS or MS. I have jaw/gum/tooth pain, blurred vision (mostly in my right eye), neck stiffness, weakness and pain in my hands, feet, arms and legs,.. I am constantly having muscle twitches in my calfs, knees and upper thighs (mostly my right leg/foot), lately trouble swallowing and somewhat slurred speech, and I sometimes have trouble holding on to things and I've noticed I'm stubbling or tripping much more often then before. These symptoms cause insomnia and I average about 3-5 hours of sleep per night, but it's just really hard for me to sleep with all of this going on, especially because it gets worse at night time or before I go to bed.
About a week ago, I went to my doctors office and saw a PA. I had told her my symptoms (which are persisting to get worse), and also my fear of ALS. She looked at me and said "You don't have ALS." I did not know what to think because I know her eyes are not an EMG test. She said I needed a lifestyle change and told me to take Alive (which is not helping at all and to be honest, acetominephines((sp?)) hurt my stomach lately). The past few days, the twitching/spasms have gotten much more noticeable, and I can barely get out of bed in the morning. I can barely do a pushup anymore and I am always fatigued. I have an MRI of my spine or back (not sure if it's upper or lower) to check if anything is wrong in that area, which I strongly believe there won't be. The stress and anxiety/worry I have from all this is basically consuming my life and I feel hopeless.
I'm 17, turning 18 in a few months, and I'm very worried about what's wrong with me.
I'm sorry for writing so much, and also sorry if I sound stupid, I Just don't know what else to do.
I would really appriciate some feedback/input and I know I can't be diagnosed over the internet, but this forum seems very supportive .
Thanks a bunch.